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New to Sjogren's World

Started by jordozmom, June 25, 2009, 07:04:45 AM

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jordozmom

June 25, 2009, 07:04:45 AM
Greetings, All!

Was diagnosed with Sjogren's 10 years ago but somehow never made it to this site!  I've recently had a flare that just doesn't seem to be going back into remission - afraid this may be the new "norm" for me.  I'm out looking for new information about coping with my new symptoms, and also for advice on coping with the fatigue and the emotional issues that come with having this disease. 

It feels so good to know that I'm not alone!

Love and Strength,

Michelle
SJS, Raynauds, Distal Renal Tubular Acidosis, RA, peripheral neuropathy, COPD, RLS, leaky heart valve (caused by SJS), Lichen Sclerosis.
Plaquenil, Salagen, Sodium Bicarb, Klor-Con, Ambien, Methotrexate, COQ-10, VitD, Multivitamin, Omega 3, B12

dbab

#1
June 25, 2009, 07:51:28 AM
Welcome Michelle,  So glad you found us!  As soon as my doc said Sjogren's I had to find a support site immediately, it has helped a lot in understanding and having some support from people who truly understand.  Welcome again!

Bucky

#2
June 25, 2009, 10:53:25 AM
Hi Michelle,

Welcome to your new Sjoggie family.   ;D  As you browse thru the site you will find all kinds of information relating to Sjogren's.  Our little family is made up of a wide variety of ages from 4 yrs. old on up, female and male.  Some are brand new to Sjogren's, others have had it for years and are just now getting their Dx.

Feel free to search for specific topics, ask questions, offer advice and suggestions.

Since this website is global, there is usually someone here around the clock.   ;D  If you are into "chatting", we have a live chat several times during the week - check our Chats link for your time where you live.

Welcome . . . kick your shoes off and make yourself at home.
Bucky
Come sit a spell and join in live chat - we serve non-fattening, zero calorie goodies while discussing all kinds of things.  ;D

http://www.sjogrensworld.org/chats.htm   (find our chat times here!)

Katybarstool

#3
June 25, 2009, 01:14:11 PM
Hi Michelle

Welcome from me too. I'm in te UK, and it's 9.15 in the evening just now, so I'm one who has definitely kicked off her shoes  :)
You will soon get to know your new 'relatives' and hopefully, be ready to join in the banter, as well as giving and receiving advice and empathy.

Kathyx

Patze

#4
June 25, 2009, 05:59:41 PM
Hi Michelle,

Let me also welcome you to the SJS World & to the family!  Bucky's right, look around as there is so much information that might interest you.

Take care -

Patze
Our home page  http://www.sjogrensworld.org/index.html
Live chats  http://sjogrensworld.org/chats.htm

Everything has beauty, but not everyone sees it - Confucius

The important thing is not to stop questioning ~ Albert Einstein ~

Sero Negative Queen

lynnmarie219

#5
June 25, 2009, 06:56:18 PM
Michelle...so glad that you found us!

You are so right when you said it feels good to know that your not alone....it's so helpful to be around others who truly understand....and that is what you can find here along with information, support, and friendship!


Scottietottie

#6
June 26, 2009, 07:09:20 AM
Hi Michelle  :)

Welcome to Sjogren's world.  I'm glad you found the site and hope you find it useful. You're never alone in here!

Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
https://kiwiirc.com/client/irc.dal.net  (way to chat + nickname and #Sjogrensworld)


Never do tomorrow what you can put off till the day after tomorrow!
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