Hi, new to site, have sle/sjogrens

[jenkay]

Hello, have been hanging out in a lupus forum for a few years but thought I'd join as I was dx with sjorgrens last may.

I was dx with lupus going on 4 years, complicated with a lot of ms type symptoms, now docs are wondering if the neuro symptoms are due to the sjorgrens.

I'm going to see Dr. Brinbaum at Hopkins in June to get his take on things and I think it is great that he is taking the neurological side of these illnesses under study.

Just thought I'd say Hi and take a look around.

Jen

[JannaLee]

Hi Jen!  It is very nice to meet you!

If it is not too much trouble will you let us know how your visit with Dr. Birnbaum goes?

Some of us are saving up to see him one day.

I certainly hope you find interesting information here....or at least interesting people, we have lots of those!

Best to you,
Janna

[jenkay]

I sure will, I just got insurance approval last week and have been down to Hopkins one other time but to see Dr Petri.  I'm not expecting the world but some direction would be great and he seems so knowledgeable.

[JannaLee]

Yes, I think he is a pretty bright guy.

I've been reading a couple of your posts and it looks like your neuro symptoms are a good fit to his expertise!  From what I hear he will spend as long as needed with you and is a good listener.

I hope your time with him will bring insight and comfort.

[Linda196]

Hi Jen, welcome to Sjogren's World.

Good luck with Dr Birnbaum, and please let us know what he has to say. He seems to be way ahead of his peers in the recognition and management of neurological issues with SjS.

[KYMOM]

Jen, Welcome.  Good luck with your appt in June.  Please let us know how it goes.  Roxanne

[Dolly Dimples]

  Glad you popped in Jen,
                                         Good Luck at the Hopkins... It's great to hear of anyone taking an interest in SS symptoms..
                        Let us know your results... Dolly.

[forest]

Welcome Jen! Glad that you found Sjogren's World.

Scott

[jonnell]

Hi jen Welcome to the site.  My 4 year old Jenna has SJS and I also believe a Lupus overlap.  Please let me know how you like John Hopkins  Jenna is currently being seen at A I Dupont Hospital for Children she has a good Rhumy but I hear John Hopkins has a better SJS program.  We live in New Jersey.  I hope everything works out for you.   Hugs and Kisses   Jonnell and Jenna

[Scottietottie]

Hi Jen 

Welcome to Sjogren's world. I used to hang out on a lupus forum but I ended up feeling more at home in here. Used both for quite a while - and a thyroid forum as well.

Isn't it great to have places to go where people understand?

Take care - Scottie 

[lynnmarie219]

Hi Jen and Welcome to Sjogrens World!

So glad that you found us.......look around and read all that you want to or are able to..there is a ton of great information here and some wonderful people from all over the world to support you. We all understand each other because we have all "been there".

Good luck at your appt. June....I hope you get some answers...let us know how it goes!