News:

Just a reminder: if you haven't signed in for six months or more, please do so if you wish to remain active...no need to post, just sign in so we know you're still interested.

Main Menu

Do you get "used to" the dryness? Newbie.

Started by Dennis, May 13, 2009, 11:08:48 AM

Previous topic - Next topic

Patze

Hi KJ,

Are you by chance using straws?  It helps with my mouth.


Patze
Our home page  http://www.sjogrensworld.org/index.html
Live chats  http://sjogrensworld.org/chats.htm

Everything has beauty, but not everyone sees it - Confucius

The important thing is not to stop questioning ~ Albert Einstein ~

Sero Negative Queen

JJ

My mother was reading an article that says green tea is suppose to help stimulate

and repair damage done to your moisture producing glands....not a big fan but

figure its worth a try and thought you may want to try as well...my mom figures

most people drink it anyway and its not a drug so it cant hurt....i said it can if it

just tastes horrible to ya....lol..Hope it helps.

JJ

dbab

Hi JJ,

There is flavored green tea bags at the grocery now.  I have a favorite brand but I won't name it here but I think there are a few brands now that flavor their green tea.  I particularly like the pomegranate green tea bags, smells wonderful too.  :)

KJ

I need to buy some straws, the problem with that, is that my kids love them, and it drives me crazy to find them all over the house.  I guess I should get used to it.  Thanks for reminding me!

ktfabian

Hi Dennis-

I'm another Sjoggie whose dryness fluctuates.  You've gotten a lot of great advice and I can only think of one thing to add -  Ayr saline nasal gel.

This comes in a tube or in individually packaged Q-tips with the gel already applied and can usually be found near the Afrin and other nasal sprays.  I find the tube is much more economical that the prepackaged type.  You just put a bit of gel on a Q-tip, then apply it to the inside of your nostrils and under your nose if it's dry. 

My current rheumie recommended this the first time I saw him because I had ulcers inside each nostril that were so bad, he said they were going to go through if I didn't do something. (He couldn't believe the rheumie I had been seeing let things get so bad.)  He recently recommended a Neti Pot, which is a saline nasal wash system that's supposed to help with allergies and dryness.  Just after I bought it, I ended up in the hospital with pneumonia, so I haven't tried it yet.  I know other people on the list have talked about them though, so maybe someone can say more, or you can do a search for past posts on Neti Pots.

I take Evoxac, which helps and I brush my teeth after every meal, which seems to me to help fight the dryness.  For my eyes, I use preservative-free eye drops.  I just tried Lacriserts, the little pellets you put in your eyes that are supposed to create moisture throughout the day, but I just couldn't get used to them.  I'd put them in at bedtime, and by 3 or 4am, my eyes would be so irritated, I had to fish them out.  For overall moisture, I have a humidifier running whenever the windows are shut, especially at night when I'm sleeping.

I hope you find some relief from your dryness.   I don't think we ever get used to it, but at least we find ways to help it not be as irritating as it can be without treatment.

Take care, Tracy
________________________________________________
55yo Sjogren's, Fibro, Selective IgM Def., back pain - fused L3/4-L5/S1,  Costochondritis, Achilles tendon tear,  cluster headaches
Plaq, Medrol, Vit D, Arava, Rituxan, Mobic, Evoxac, Tumeric 1000mg daily, Cymbalta, Fiorcet, Klonopin, Soma, pain med.