new to sjogren's world not so knew to sjogren's

[pghgirl]

 hi I'm erin. I have sjogren's i was diagnosed at the every end of 2007.

i will be attending my first sjogren's syndrome foundation patient seminar.   will anyone else be in Arlington, VA  for the conference?  i'm pretty excited but i am also nervous and dont know whats going ot happen

[Patze]

Hi Erin,

Let me welcome you to the SJS World!  Please do look around the board as there are just tons of topics that might interest you.

There are a few members that have already posted about attending the conference and I hope that they'll stop by to let you know what they're planning on doing.

Can you tell us a bit more about you?  We would love to get to know you better.

Take care and again, welcome!

Patze

[Linda196]

Hello Erin, welcome to Sjogren's World.

We've had a few people talking about the conference:
https://sjogrensworld.org/index.php?topic=8461.0

I hope you enjoy it and find it helpful, I've never had the opportunity to go to one, and I've never met a person DXd with SjS face to face.

If you get the chance, try to meet up with anyone from here, and you can all spread the word about the best SjS support on the web! We'd also love to see any reports you'd like to share with us after the conference.

[Patze]

Thanks Linda, I couldn't find it this morning - ugh!


Patze

[Scottietottie]

Hi Erin 

Welcome to Sjogren's world.

We hope to hear about the conference in here once people have been to it.  I hope you find the site useful. Everyone in here is pretty friendly.

Take care - Scottie 

[lynnmarie219]

Hi Erin and !


I'm glad that you found us here at Sjogrens World! Its also good to hear that you will be able to attend the conference in Virginia...I wish I could go as I have never been to one....but maybe I will some day!

Let us know how it goes and if you found the conference helpful!

[pghgirl]

thank you all for being so kind and welcoming!  i will be sure to  post what i learned and felt about the conference.

i never know what to say about myself to introduce me. 
i'm 24 and female.  I have 3 years of college in for the major of social work. a year and a half i had to quit  because i became to ill  to attend school and care for myself.  I moved back in with my parents, i am very  lucky that they are so supportive and understanding.  it sucks but is helpful that i am not the first person in my family with  an autoimmune disease.  so  we were not flying blind.    i also have a myriad of other diagnosis including 2 other autoimmune diseases.  they are like  potato chips you cant have just one.  or maybe that is just me ?

[wednesday mc haggis]

PGH

welcome to the forum, sinc eim in scotland i wont be at the conference, but glad to hear your going and will get  a chance to meet up with other suffers, like linda ive never met anyone with SJS, just glad i have  achanc eto share expereinces here, its such a greatb place for info and support.

   Glad your parents anre so supportive, it helps so much.

many ppl here have multiple AI issues, your not alone in that, as someone here always says they seem to run in packs, not good to hear that, but you ll find many here are same as yourself.

   good to see you found us, the information here helps so much in understanding how and why SJS affects us, and treatments that help

T x

[lynnmarie219]

i also have a myriad of other diagnosis including 2 other autoimmune diseases.  they are like  potato chips you cant have just one.  or maybe that is just me ?

Nope its not just you...its true that many of us have more than one AI diagnosis.....I like your analogy of them being like potato chips.....you cant have just one! Too true unfortunately!

[sassytoo]

Hi I am Elaine/sassytoo and I am from North Dakota. I have never been able to meet anyone with sjogrens . I do like the board here ,but I am more of a lurker then a poster, as I am always thinking something negative to say and that is no fun for the rest of people to read all the time.

I love being compared to a potato chip, thanks for a good laugh this morning. I needed that.


I have joined the e-pal forum, but after a couple of emails or letters back and forth we just drop off , but it is nice to have someone to chat with who understands.

[Genevieve]

Hello all
I'm new here, too, but was diagnosed 14 years ago, at the age of 30. I have primary Sjogrens, secondary R.A. and Raynauds Phenom., so I guess I"m kind of a potato chip as well! Love that. I just moved to Nova Scotia from Calgary - so, to the ocean from the desert - and am loving the change to my eyes. In Calgary I was forced to spend $400/month on Lacriserts (not covered by insurance) just so I could keep my eyes open, but here I haven't had to use them for months. Love that ocean air!

My dad died of Scleroderma & his dad died of Lupus, so my family is pretty familiar with auto-immune. I watch my daughters (8 & 11) constantly, watching for indicators. My older daughter has always complained about her tongue hurting with specific foods and she has a lot of questionable complaints, but I've been advised not to get her tested - if she's positive for anything then she'll never be able to get insurance!

[Pooh]

Hi Erin,
It's so good to see you here.  We met over on the other website.  I hope you find some more answers here that will help you along on this Sjs journey.  And also lots of friends to help you along the way.

Hugs, Pooh

[kcoffiner]

Hi Erin! Welcome to Sjogrens world. I can totally relate to your story even though I am a bit older (27). I was diagnosed at 25 but looking back I had subtle symptoms for yrs before my official diagnosis. I will be attending the conference in VA as well for the first time. I would love to meet up. I will send you a PM.

K