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Sj?gren's Syndrome Community

Started by littlemoe, March 15, 2009, 10:46:55 PM

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littlemoe

A Sj?gren's Syndrome Community has opened up on Rareshare.org.  Patients, Family and Health Professionals are invited to make contributions.  RareShare is a unique social hub building communities for patients, families, and healthcare professionals affected by rare disorders.

Maureen

Scottietottie

Hello LittleMoe  :)

Welcome to Sjogren's world. Thank you for bringing another site to our attention. As you've probably seen - we've got quite a 'community' going on here but its nice to have more than one port of call.

Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
https://kiwiirc.com/client/irc.dal.net  (way to chat + nickname and #Sjogrensworld)


Never do tomorrow what you can put off till the day after tomorrow!

kimbo

littlemoe,

Thanks for the info.

Welcome to a wonderful group of sjoggies, sharing our unique journey together, with  lots of compassion, encouragements, support with basic advice and lots of information.

Is there is anything we can help you with?

Tour thru our many threads and make yourself at home.  :)

blessings kimbo
     
Diagnosed March of 2007. SJS/ RA Positive at 80  International-SSA strongly positive at 811-SSB 273
ANA positive at 1:1280
Hashimoto's
Gabapentin, propanol, Celebrex, Synthroid, Cytomel, vitamin D, B complex, Omega 3 complex, and multi vitamins; At 62, I seem to be a low maintenance sjog

JannaLee

Thank you, Maureen.

I'll check it out right now!

Janna

quiger

#4
Just to clarify; We believe that when Maureen mentions "contributions", she is referring to posting info or experiences and not monetary contributions. Some members found this confusing, but after checking out the website we feel this is what she meant.

Maureen, If you have Sjogren's, I hope you will come back and share your journey with us.

quiger
Check out the info on the home page  http://www.sjogrensworld.org/index.html

Care

Hi Maureen,

Welcome to Sjogren's World!  Tell us a bit more about yourself. You will find wonderful support right here in our neighborhood.  We have a fantastic group of moderators and a very supportive community. I hope you enjoy your time with us. Happy to have you with is Maureen!

Care