PET Scan??

[tsharrard]

Has anyone had a PET scan done to verify a neurological problem? Years ago I was diagnosed with MS,, but the Neuro doc is no longer around. i really liked him. He retired and went into research i believe. He made his diagnoses acording to the PET scan. All other tests were clean.

He did a spinal tap and sent it to california to look for something but I cant remember. I saw Dr. Rudick at the cleveland clinic and he questioned whether i had MS or not. I have been fairly well, up until now. I really dont have any MS symptoms except I stumble occasionally because my foot will turn in. I have had a couple wierd things happen with mylegs, they get etremely weak, but the sensation doesnt last long.

Can a PET Scan diagnose an autoimmune disease? He showed me the pics and said that there were significant places on the scan that reflect the symptoms I had been having. I am having memory loss, in fact people tell me i said things when i have no recall, and also lost an hour somewhere when I was driving,, the police had to give me directions to get home. Also years ago when the spinal tests was done he said something showed up that shows up in people who get alzhiemers. So of course the first thing I start thinking is OH Know am i getting Alzhiemers.

Wel, I went to a new neuro,, was very pleased and they couldnt find anything either it might be stress. although they did find a small plaque but wasnt concerned about it. and said it wasnt MS. So i went on my way,, chalking it up to stress and that I needed to rely on God more and stop letting myself get so worried and stressed out. Well, now i am dealing with the possibility of going through tests to see if i have another AI disease. again I imagine the tests will make me look like i am a hypochondriac.

It is so hard to find a doctor that believes in you and not think you are some whiny female going thru menopause.

[Scottietottie]

Hi
I've never had a PET scan. I've had a spinal tap to test for MS and I don't have it. I've also had doctors who patently think it's hormonal or hypochondria or a mix of both.

I know there are members who have been dxd with MS and then had that dx withdrawn and replaced by SjS. They'll have to tell you on what grounds if they read this post.

The trouble with SjS is that it can have symptoms that can also be attributable to several other things so it all gets very confused as to what is causing which symptom. Personally I think everything gets worse if we get too stressed out trying to sort it out. I do believe strongly in doing everything possible to alleviate symptoms however.

I'll follow this thread with interest to see what answers you get.

take care - Scottie 

[gurs]

I guess Sjogrens can act like MS too.....I have sjogrens/lupus and had very mild neuro issues until I had my hysterectomy 2 years ago and my hormones went nuts..
I have terrible neuro issues now..horrible neuropathy pain, dizziness, bowel/bladder, memory loss, muscle weakness..the list goes on. Ive had every test and everything comes back normal , other than the sjogrens/lupus.  They say having low estrogen can cause this and many females going through menopause suffer with neuro issues...have you had your hormones tested? are you on any hormones? just curious?

gursie