Fear of weakness

[Sandra]

Hi eveybody, do any of you deal with, dealing with being weak? I've been having a time lately (gallbladder) but sort of started to sort it out on double dose prednisone, but then I catch the world worst cold, terrible one everybody has it it lasts for weeks. So now it's been since about mid October since i have been really on my feet and things are a pilin' up!  The house, the office, Christmas and fun darn it I need some fun too! But I feel so weak and so tire still that it frightens me to get out and get some things done. Any of you become frightened when you have stuff you just have to do when you feel tired and weak? Thanks Sandra

[Pooh]

Hi Sandra,
I know exactly what you are feeling.  I stood in my kitchen this morning and shook and cried because I have so much to do and I am staggering around , having to hold on to everything in sight.

I wish I knew what to tell you because I would do it myself.

Hang in there and hold on, maybe tomorrow will be better.

Hugs, Pooh

[wen.uk]

Hi Sandra

So sorry you're having such a lousy time of it - when it kicks in it seems to invade your whole body and mind.  I had a bad spell a couple of months ago and could have happily closed my eyes and never woke up just to escape the incessant fatigue.  The only way I can deal with things is in bite size pieces, just do what I want to do, or what is most urgent - everything else just has to wait.  I also find that keeping myself comfortable in lovely comfy lounging clothes, watching a favourite film or show seems to help as I think of it as spoiling myself and 'me' time rather than giving in to the illness.

Wish I had more answers for you, but instead I'll send you a big hug x x

[Scottietottie]

Hi Sandra

A lot of years ago I felt the feeling that you're describing. Something had to 'give'. I decided I'm not running myself ragged because it's what the rest of the world expects. I'll do what I can and what I enjoy and the rest I won't do. What's more - the world doesn't end if it's not done either.

How much of what you are feeling you are not doing actually HAS to be done. Make a list and then number things in order of importance and I bet a lot of ot is expectation rather than necessity.

Take care - Scottie 

[DesignerS]

Hi Sandra,
You are not alone, but I am sorry you are feeling so bad.  As I needed my son to take me for chest xrays today, I felt weak.  I should be helping him!  I hate it, really.  I can see that those "good" days are like gold now.  I guess we just cannot plan ahead too much, maybe that will keep us from disappointment    Usually by now I have my list made for Thanksgiving dinner and have started planning for Christmas.  Not this year.  Hang in there!  We are all here for you.

Designer

[genko_b]

I am finding more and more I need to lie down for an hour or so in the middle of the day. If I don't, I don't make it through to bedtime. It used to be I could schedule something for two out of three periods of the day - morning, afternoon, and evening - as long as I scheduled the last third for resting. Now it seems like I can only do one thing a day.

This morning I took a friend to the nursing home to see his wife, who has Alzheimer's. I left my house at 9:30 and got back home at 12:30, and that was kind of it for the day. I dropped something off at the tea school on the way back, and my sister came over briefly, but here I sit at 5:30 pm Seattle time just exhausted. I need to make some dinner, but am too tired to even eat. So tired it makes your body ache and feel lousy. Is that what you mean by weak? I think many of us feel that way; that is one of the worst parts of this condition to punch through.

Genko