Afraid to know my biopsy results

[kelene]

Tinker I believed I have replied under two threads so I am not sure what I have told you. Looks like myositis acts like myositis repsones to drugs like myositis... and from a history of skin rashes .the word dermatomyositis has been  mentioned. But my muscle bx was normal a couple of years ago. I don't really want a second one but might be the case. My EMG are borderline.. they show some mild changes to the muscle.

I can work.... oddly enough but I have had to make alot of changes in what I do and I am currently only working very part time.... Just enough to try and pay the bills... but where I work one day a week is up a huge set of stairs.. so I never sure If I am goin to make it up them... and today will be interesting.. I am currently at my weakest.... I am not crawling up the stairs at work.. soooooooooooooo... ( I do that at home )

I am still waiting to hear... so I can't imagine how you feel

[Tinker]

Kelene, yes, it does sound like dermatomyositis with the rash involved.  I can't believe you are able to work.  I really miss working , being with my students, and feeling like I had an identity.  Today, I feel like an old woman who lays in bed with a heating pad and medication.  I'm not THAT old but sure feel like it.

While having a negative result would be good news, I'm actually hoping for a dx to get the IVIG.  My neuro thinks it's GREAT.  She said I'd feel strong in 30 min.  That's not what I've read.

Kelene, are you waiting on more tests, or did you mean you were waiting on my mbiopsy test?

BTW, I did called and got an appt with the neuro, called the surgeon yesterday and today for m biopsy results with no luck so far.  I'm so exhausted.......