News:

These message boards are a friendly helpful place, please post with thoughtful consideration of others. Thank-you.

Main Menu

worst symptom

Started by kcoffiner, October 08, 2008, 04:38:21 PM

Previous topic - Next topic

Billydude

My eyes and mouth are the least of my problems.   Fatique and CNS involvement are the worst for me.
Steve

Cheryl

Kim,
   Sometimes my eyes are my worst symptom.   They may be "just dry eyes" for a week or two at a time.  Then on bad days, they sting and ache in addition to the dryness.   Sunlight is painful to them, and I feel like crying.   The discomfort in my eyes overpowers joint/muscle pain and makes me even more fatigued.   Sometimes it lasts for several days.   
Cheryl
Chat co-host on Thursdays at 8:00 Eastern time

Allison

My eyes are my worst symptom by far.  I do get fatigue, but I also have a two year old to chase, so I don't know if that's the SJS or the toddler.  I also have occasional dry mouth. My eyes hurt non-stop.