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New Naltrexone RX ...question

Started by eye2dry, April 20, 2023, 05:19:16 PM

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eye2dry

Hello all.

My old rheumy would never RX Naltrexone but I asked my new Dr if we could try it. Today she sent in to my local pharm 30 days of Naltrexone HCL 50 mg one daily.

Doesn't the dose sound high ? In her office and in our emails I referred to the drug as low dose Naltrexone, she does not use the term low dose.

I read in several internet RX sites...for off label use such as for pain dt inflammatory disease the doses should start out 1.5 mg up to 5 mg.

Anyone else take it like my Dr prescribed.

Thanks
Shelly
medications: synthroid- meloxicam- plaquenil- lots of supplements

***Lord help me to be the person my dog thinks I am***

Linda196

She may have misinterpreted your request, or not be familiar with prescribing "off label" for inflammation; that is the standard dose for the treatment of alcohol dependency, which is even higher than that for opioid dependency.

Please discuss it with her before taking the medication. Possibly take some printed information you've downloaded , so she can familiarize herself with standard protocols.
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eye2dry

Hi Linda.
Yes, I called back and she does seem not familiar with this. She and her staff checked 5 compounding pharmacies and none made Naltrexone tabs. So she has faxed RX to my neighbor pharmacy on my plan to ask if they could get in Naltrexone suspension for me, apparently it's one drop = 1mg.
medications: synthroid- meloxicam- plaquenil- lots of supplements

***Lord help me to be the person my dog thinks I am***

jazzlover

WAY WAY TOO HIGH. GO find a support group on Facebook. They can tell you how to use this dosage.....diluted.

OR .. ask you doctor to please prescribe 1mg to be compounded. It's the only other way you can get the right dosage.

Believe me, it's WORTH IT!!!

PS .. 50 mg is the lowest dosage available without compounding it.
Mast Cell Activation Syndrome (MCAS), Salicylate Sensitivity,  Interstitial Cystitis,  gluten intolerance, Raynaud's, Sjogren's, A-fib; cytomegalovirus, mycoplasma,  recovered from Lyme disease

eye2dry

Yes....Jazzlover. I had to call my Dr and tell her 50mg was way too much, it was apparent she has not prescribed it. I found the closest compounding pharmacy, spoke to the pharmacist, then emailed my Dr. gave her the info, including pharm. Name and fax number. Insurance will not pay anything on it. I am taking suspension 1mg daily, tastes terrible even though it's suppose to be strawberry. Not sure if I feel any different just yet, if not, I suppose it will then be 2mg daily
medications: synthroid- meloxicam- plaquenil- lots of supplements

***Lord help me to be the person my dog thinks I am***

Carolina

I take 4.5 mg naltrexone a day.  50 mg would NOT be Low Dose Naltrexone.

Quote:  Low dose naltrexone should be started at an extremely low dose, such as 1 to 1.5mg/day, and the dosage should be increased by 1mg every week to a maximum of 4.5 mg/day.

https://www.drugs.com/medical-answers/low-dose-naltrexone-ldn-3570335/#:~:text=Low%20dose%20naltrexone%20should%20be,maximum%20of%204.5%20mg%2Fday.

Best Wishes, 
Elaine
Female-Elaine,83-CVID-pSJS-WMD (Eylea)-COPD-Inter. Cys-PN-CAD-Osteoarth-SFN-Erythromelalgia-SIBO-PMR-Adrenal Insufficiency-Hearing Loss-Achalasia-Bacteriurea-Power Chair-IVIG Gamunex 50 gm-Medrol-Wellbutrin-Buspar-Gabapentin-Atenolol-Salagen-LDN-Lipitor-Premarin-Nexium-Om.3-Repatha-KLOR-CON-Maxide

SjoDry

50 mg is what the FDA originally approved the "on label" use for. Off-label is typically 4.5 mg or less.

SjoDry

eye2dry

My LDN saga.
After 3 weeks, haven't noticed a difference with 1mg. My doctor just called in a new RX for 3mg daily. I hope I notice something then.
medications: synthroid- meloxicam- plaquenil- lots of supplements

***Lord help me to be the person my dog thinks I am***