New treatment

[SabbraCadabra]

Well, it's been two years now, so hopefully I start seeing some improvements soon.

It does seem like I have a lot less fatigue these days, but I also haven't been working as hard, so it's difficult to say that it's one thing or the other.

Dryness and food allergies seem about the same.

I only took my third dose a few weeks ago though, so it's still "early days", so to speak. Not giving up hope, just a small update.

IIRC, my first dose was 5, my second dose was 15, and my third dose was 10. The second dose gave me really bad "worm flu" for a day or two (severe nausea all day), so I decided to lower it a little.

[rcristal]

  I have discussed this with medical people for years.   Most agree with the concept but will not recommend it until the FDA weighs in.  As my symptoms have progressed I have become very close to trying it.  I actually had this conversation as recently as this morning with a professional.

Rcristal

[irish]

I have some observations. First of all, I don't see or hear about a line of people waiting to get this treatment. Also, I don't see a lot of doctors writing in favor of this treatment nor do I see any hospitals who use this for any or a lot of patients have their names in any magazines.

If there was a lot of positive input about this treatment I would expect to see the medical magazines over run with articles about the glory of this treatment.

And lastly, there are a few anti parasitic drugs and other drugs used to get rid of the worms that people have in their colon. Generally worms in colon have the tendency to migrate to other organs...one of them being the brain. Ii am inclined to wait this one out. Research needs to be done in large quantity and I do believe the medical community is not too inclined to get involved with this at this time. My opinion. No opinion of each person just opinion on worm therapy. Itish

[rcristal]

  What I failed to say in my previous post is that I recently spent 2 1/2 hours one on one with a well known Physician at a well known University discussing ALL of this.   He has been interviewed many times.  Later today I will post a couple of articles. 

I am on the fence.  However, as symptoms get worse I am strongly considering it.  I will say that after reading a great deal on the topic, and not being in the medical field, the concept makes a great deal of sense.

Rcristal

[irish]

just for your information, I just, in the past couple of weeks saw a new list of new drugs listed that are being used with good luck on Sjogrens. They are biologicals. I didn't take the time to write these down. I would think that a search would find them. I don't believe that a doctor or clinic/hospital was listed with the info. Irish

[SabbraCadabra]

I suppose I should update, still haven't seen any improvements, but like I said, I wasn't expecting a miracle.

But I might also be doing it wrong...I've seen a lot of people say that they'll take one or two larvae on a monthly basis, or they'll mix it with other helminths...it's really hard to figure out dosing on this when there's no medical regulation at all.

But I will say, this last dose gave me a REAL bad case of worm flu...my blood pressure was bad for a day or two, I seriously thought I was going to pass out at work.

[meirish]

I am concerned that these issues could reflect on your autoimmune disease. Have you checked with a doctor....meirish

I would think they can carry viruses