Trouble with digestion a part of SJS??

[Deb 27]

So, I have noticed if I eat red meat at night, I h ave a hard time digesting it and it causes reflux. Do we have a problem making digestive enzymes ? It seems like we would since we don't have much saliva. Of course, most enzymes are made in the pancreas for digestion. I am going to ask for my doc to check my enzymes. On the other hand, if I take digestive enzymes, I get diarrhea.

I sleep best when I don't eat meat at all at night.

[jazzlover]

Red meat is difficult for anyone to digest. It gets even harder with no saliva (and age.) Digestive enzymes are not created equal.

I had to search and search to find one I tolerated.

I take Source Naturals "Essential Enzymes."

[SjoGirl]

Hello Deb. Yes, it's quite typical for those with SjS to have digestive issues. My early stages included many digestive issues and significant weight loss because I was not absorbing nutrients.

I've read that as much as 70% of digestion happens in the mouth (or from saliva). I do know that I am able to take less of a PPI since I started taking something to promote saliva production). I also know that try as I might, I can't live without something like a PPI, does not matter how much I restrict my diet unless I only eat oatmeal.