New symptoms

[Kristina09]

   I?m getting these episodes that I have never had before and they are increasing in frequency. It?s that suddenly I HAVE to lay down, and even if I?m already laying down on the couch I have to go lay in bed.
   I can?t describe expectations what I am feeling other than a heaviness, if that makes sense, I can?t have a conversation. It?s like I?m not there.  I just say I have to go lay down and I leave the room, it?s a sudden urge. When I lay down I have to close my eyes and it must be quiet. I?ll fall asleep but after 30 min to an hour I feel better and get up. 
Has anyone else experienced this?
Is it related to fatigue? 
Am I going crazy?
   It happened tonight, I know I?m having a flare and when I woke up I had pain in joints that weren?t hurting earlier like my elbow and my index finger.  This disease makes me feel like I?m losing it sometimes just for he simple fact that I can?t describe or explain what is happening.

[happylife]

I have the same feeling on random days.

Usually if feeling is there in the morning, stays that full day.

Some days... This does not happen.

I have always thought that this is fatigue.

Now i wonder if fatigue is different?

[araminta]

I do get times when I have to lie down, especially late afternoon.   I imagine it must be the fatigue that is associated with Sjogrens.

[Carolina]

In my experience a flare causes:  Pain, profound fatigue, and depression.  Flares are caused by inflammation brought on by the active phase of our Immune Disorder(s).

Because I have osteoarthritis (severe) every affected joint in my body hurts and throbs.  Even the long bones in my arms ache.  When I have a flare, I can only sit in a dark room with my eyes closed.  I cannot read, watch TV, talk with people.  I sometimes take a large dose of Benadryl so that I can go to sleep. 

I also have Medrol (methylprednisolone) and can make my own 'taper' (large dose tapering down to my usual 2 mg every other day).  The taper will interrupt the inflammation (Medrol is a STEROIDAL anti-inflammatory).  When the inflammation is interrupted the pain, fatigue and depression go away.

It has taken quite a while to learn how to deal with the inflammation of a flare of my Immune Disorder(s).

The one thing, for me, is that sleeping, when I am in a flare, doesn't really help.  Sleep doesn't make me feel rested.   It just lets me 'escape' from the flare.

Best wishes,

Elaine

[Kristina09]

   I think the fatigue for me is getting worse. I also think every flare lately gets worse and lasts longer.  I guess that?s the progression.  I?ve been in a lot of pain lately. Considered going to urgent care today but waiting it out. I?m convinced the pain takes its toll on me mentally as well. It?s just exhausting. Thanks for your understanding.

[Sweetcheex76]

I got that way a lot. I get weak, almost like my legs can't hold me up and my entire body feels so tired. I lay on the couch and hope it passes. During that time, I'm not sleepy so I just lay there feeling crummy and worthless because I can't get up to get any of the stuff done I wanted to.

[lorigacc]

Kristina09-
My fatigue seems continuous anymore. I do have extreme and sudden episodes. I was out with my sister doing a little bit of shopping the other day, and all of a sudden...I am hit with such exhaustion, that I legs won't work to get me back to the car. It's like hitting a brick wall.  If it weren't for others experiencing the same type symptoms...I seriously think I would be doubting my sanity!!! This board is a godsend.

Lori