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Vagal stimulation study

Started by Nymph, October 09, 2017, 02:55:40 PM

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Nymph

So, many of you know that I have been excited about the idea of vagal stimulation for awhile. Well, now there has been an initial study for Sjs! I am thrilled, to say the least. It's the perfect choice for me. Hope that they can fast-track this one.

http://acrabstracts.org/abstract/the-effect-of-non-invasive-vagus-nerve-stimulation-on-fatigue-and-immune-responses-in-patients-with-primary-sjogrens-syndrome
38 y.o. teacher; anti-CCP+, RF+, otherwise seronegative; POTS; Plaquenil, Allegra, Depakote, Neurolink, C, probiotic, multi-V, magnesium, quercetin, NAC, DHEA, fish oil, D3, turmeric, ubiquinol; <3 my neti pot

Maria3667

Hi Nymph,

This certainly sounds interesting. But I gather it's available only with subscription? And a bit expensive too?
54. DES-daughter ('67), Lyme's ('98), GAD ('98), Sjogren's ('02) - changed to Sicca ('20), hypothyroid ('04), endometriosis ('14), osteoarthritis ('16), blepharitis & MGD ('18), Pilocarpine, thyroid meds, 12.5mg quetiapine. Allergies: sodium hydroxide, nickle, methylisothiazolinone, latex

MAT51

I'm fascinated of this and somewhat envious that you will be trying it out - I would love to be considered for this form of treatment! Best of luck and I will look forward to reading your updates on its effectiveness for you!
Hashimoto's, seronegative RA, Primary Sjogren's, small fibre nld polyneuropathy, hypertension, IBS-C, GORD, BMS, highly allergic disposition!

Sharon

It's a small study, but sounds promising.
I believe there is a hand-held vagus nerve stimulator that may be purchased.
WhatYouSjo writes of this on his blog:
http://www.whatyousjo.com/blog/
Sjogren's (+ RA): positive ANA, RNP, RNP-A, APCA. Severe eye dryness + inflammation, multiple sensitivities and allergic reactions, fatigue. 
ORENCIA, Restasis, Anti-inflammatory diet, Vit. D & C, Ubiquinol 100mg, Omega 3....

Nymph

Yes, there is a hand-held version, which appears to be what is used in thise study (vs an implanted pacemeker).

I don't have any immediate plans to get this treatment for myself, as it's not yet approved. But you can bet that, once it's approved, I will be agitating for mine!!   ;D
38 y.o. teacher; anti-CCP+, RF+, otherwise seronegative; POTS; Plaquenil, Allegra, Depakote, Neurolink, C, probiotic, multi-V, magnesium, quercetin, NAC, DHEA, fish oil, D3, turmeric, ubiquinol; <3 my neti pot