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New symptoms? Or not related?

Started by Kadiddle, June 02, 2017, 12:28:47 PM

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Kadiddle

Hello Quietdynamics. Interesting read. I'll talk to my Rheumy about the increase in Plaquenil when I make visits to Las Vegas. Anything to keep from feeling that fatigue.
Primary Sjogren's, Undifferentiated Spondyloarthropathy dxed 1994, Dry eyes with corneal erosions and ulcers, dry mouth, chronic constipation,
Meds/Supps: Meloxicam, Restasis, Evoxac, Omega 3 with Flaxseed Oil,  Multi-vitamins, Magnesium Citrate, Vitamin D3, Probiotics

daisymay

Someone else might have already said this (I'm tired, so I just scanned everyone's comments), and you know better than I if the sun caused your itching, but as an FYI--neuropathy can manifest as itching. When my carpal tunnel acts up, it causes me to feel like my palm is itching, when it is actually the irritated nerve causing the sensation.

DryKY

I am a nurse too, and I started having these weird symptoms (which I have self dx'd as primary Sjogrens syndrome) this summer as I spend a load of time in the sun at a pool for the first time in 14 years.  Now I am trying to cope with this extremely dry sticky mouth, insomnia from it, hearing issues, fatigue, dry eyes, panic attacks, numb hands, dry skin, awful taste in mouth and ETC.... as I try to get doctors to listen to me and order tests that may diagnosis.  I am fairly certain that sun exposure brought this on.  No rashes.  Steroid dose packs are the only thing that give me some relief.  I just want to feel normal again!!!

Carolina

It all has turned out to be related for me.  My Disordered Immune System has caused everything, except perhaps when I dropped my computer on my foot!  (an attempt at humor, but it DID hurt since it fell edge down on the top of my instep, which saved the computer from damage, I guess.).

I'm sorry to hear about the development of Peripheral/Small Fiber Neuropathy.  The PN has been so severe (Profound) that I can walk with braces, and then only with difficulty.

Best wishes,

Regards,  Elaine
Female-Elaine,83-CVID-pSJS-WMD (Eylea)-COPD-Inter. Cys-PN-CAD-Osteoarth-SFN-Erythromelalgia-SIBO-PMR-Adrenal Insufficiency-Hearing Loss-Achalasia-Bacteriurea-Power Chair-IVIG Gamunex 50 gm-Medrol-Wellbutrin-Buspar-Gabapentin-Atenolol-Salagen-LDN-Lipitor-Premarin-Nexium-Om.3-Repatha-KLOR-CON-Maxide

daisymay

If you don't mind me asking, Elaine, what is it about the neuropathy that causes your need for braces? I've had an increase in ataxia and also have PN. Been wondering if bracing would help, and if so what type of brace(s).