I'm back and not sure where to start

[engy]

I had my thyroid levels checked immediately and they were fine.  I do not have a thyroid anymore due to Hashimoto's.

Ive been relaxing all day and just got up to vacuum a rug and I immediately felt flushed, short of breath and sick to my stomach.  My old symptoms from being first diagnosed are all coming back full force.  This is horrible.

[Nymph]

Do you wear compression tights?

[irish]

There is a tumor called carcinoid syndrome or neuroendocrine tumor that is quite rare. However, there are more and more people being diagnosed with it lately. It causes chills, flushing and sweats and I had one that was found on my appendix when I had my hysterectomy many years ago.

It can grow in the lungs or abdominal cavity and other places. It wasn't classified as cancer when I had it but I had  a 6 inch appendix attached to the back of my abdominal cavity with the small tumor on it. My doc had to remove all my bowel and check it for tumor plus check my liver, spleen and gallbladder.

I don't want to scare you but at the same time I want to instill enough concern in you that you will bug your GI doc to check for this. They can do a 24 hour urine test called a 5HIAA test and they can also do a blood test. I would really push for this test just to rule this out. Do not panic as most likely don't have this. However, you don't want to walk around with this. There are so many things that are affected in our body when we have autoimmune diseases and so many of us sweat a whole lot abnd have other symptoms that are hard to pin down. The carcinoid is something that they are finding more often now because of more knowledge and better ease of testing.

Just to let you know about this as you don't hear about it much. My tumor was small but I had to have the urine test done yearly for several years to make sure it had not spread. Good luck. Irish

[engy]

Thanks again everyone for all your thoughts and suggestions.

I ate dinner last night and my stomach hurt for hours.  Then came my panic which made me shake & not sleep all night. 

I haven't had to wear compression tights in over a year. 

I know my anxiety is high right now and I know it is worsening my symptoms but I'm finding it hard to fight it.

I will ask my doctor about carcinoid syndrome Irish.  I am going to call tomorrow and try to get in to see my primary doctor this week.

[engy]

Irish, my doctor ordered the 24 hour urine test for carcinoma syndrome.  She doesn't think that's what I have but everything else is coming back negative and she said it wouldn't hurt to rule it out. Now I need to find a day to collect my pee all day and get the sample to the lab. 

I did the glucose breath test this morning for bacteria - it was negative too.

So here we go again...

Thanks for the suggestions