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New prescription eye drop Xiidra

Started by gurs, October 28, 2016, 10:37:26 AM

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irish

My optometrist daughter in law thanks you for this thread. She has prescribed this eye drop to some of her patients but has not always heard back from them. I read a lot of these posts while she was cleaning up the kitchen and she was so happy to get the input as it helps her with answering questions with patients. Takes time for her to learn a lot of the side effects and effects of the new drops. Thanks you all. The people on this site always come through. Irish

gurs

I just saw my eye doc a few days ago. I keep breaking blood vessels in my eye, likely from extreme dryness and sinus issues.
I have been using genteal drops for years, but I swear they changed something in their formula. I contacted manufacturer and they said they changed packaging, but formula the same...I don't think so. He gave me sample of Systane complete, and I think they were better.

He also said some patients have reports good results with the Xiidra. Im going to give them a try. Im afraid I will like them, and then have to figure out how to pay for them!! HA HA!!

I would also use caution in those of you on long term steroid or antibiotic drops for the eye, as the side effects can occur
down the road. My eyes always felt better when I had a steroid drop, but docs said NO WAY.

Gursie
52 years old.Primary SS, Lupus, Raynauds, POTS, Hormone issues from Hyster-menopause, systemic candida,osteoporosis,Gastroparesis, chronic neuropathy, migraines, sinus/dental issues. selective immune def/low t-cells.
Prednisone & medrol , plaquenil, diflucan, bio-estrogen creams,many supplements

cccourt1942

GURS:  re: your last post on "breaking blood vessels"
        I looked at your regimen under your name....is this correct?  You aren't on Restasis or Xiidra?  Nor are you taking Omega 3?  I ask that as the "blood vessel" thing was one of my early "conditions"....long before I knew it was a symptom of anything.  The last few years (prior to SjS dx) the "red" in my eyes would erupt a couple of times a year to what appeared that my eyes were bleeding.  The ophthalmologist would dx it as "allergic conjunctivitis" and I would be treated with steroid drops.  The drops worked...but that bloodshot eye look would remain...ever present.  AFTER SjS dx, a NEW ophthal (didn't go back to 1st one) told me to get Omega 3.  Within a couple of months my eyes improved.  This was BEFORE Restasis was Rxed.  When I say improved, I mean friends commented on my eyes looking "brighter".  In fact, I had already seen it...but hadn't realized how dramatic it was until various people commented.  I have moved since my initial dx.  The ophthal's office where I go now "sells" (actually provides brochures for info--yet recommends the product) a super (and super expensive) Omega 3.  I passed on it due to the cost----plus the fact the redness had decreased a lot.
      Have a good day..and Happy New Year!  :)
ccc
Sjogren's, Psoriasis, Hashimoto's, Osteoporosis, Osteoarthritis, Cold hands/feet,  fatigue,  pilocarpine-25 mg , Restasis, Plaquenil, Low dose Prednisone (2-3 mg daily) Xylimelt, Citrucel, Alcon-Naturale, Tears,Omega 3, Vit.D, Caltrate+D3, Fosamax, CoQ10, Zinc, Oxtellar. Levothyroxene

gurs

Ive been taking omega 3's for years. I cant fit every supplement on my bio (ha ha) ..would take up a page. I have to talk to my rheumy about this in few weeks. My eye doc said maybe something vascular related, probably need an MRI or something. Also, I have excessive bruising and thin skin all over from my steroid use, thus causing my blood vessels to leak easy. My sinus/allergies seem to be playing a huge part in all this. Hopefully, will get some answers soon.

Thanks for the info!

Gursie
52 years old.Primary SS, Lupus, Raynauds, POTS, Hormone issues from Hyster-menopause, systemic candida,osteoporosis,Gastroparesis, chronic neuropathy, migraines, sinus/dental issues. selective immune def/low t-cells.
Prednisone & medrol , plaquenil, diflucan, bio-estrogen creams,many supplements

bettyp

I use Restasis and then 15-20 minutes later the Xiidra. It still stings after several months, but it works and I'll continue with both. The short period of stinging is worth not having my eyelids stuck to my eyeballs every morning.

eye2dry

hello to all.

I have been using my free Xiidra samples one month now. It is helping a lot.

I use way less eye drops during the day and do not get up at night anymore to

put drops in. My eyes look "whiter" now. Yes, it stings for a second when putting in

and yes, it makes your vision blurry for approx. 10 minutes but then you get relief!!

It's a watery drop but to me it feels like it is making a protective oily protective

covering over my eye.



It costs me $120.00 for 3 months supply....the mail order pharmacy said
without my insurance it would cost me $1100.00 for 3 months.


shelly
medications: synthroid- meloxicam- plaquenil- lots of supplements

***Lord help me to be the person my dog thinks I am***

cccourt1942

BettyP: Did your ophthalmologist advise/prescribe using both drops...simultaneously?
Thx,
c3
Sjogren's, Psoriasis, Hashimoto's, Osteoporosis, Osteoarthritis, Cold hands/feet,  fatigue,  pilocarpine-25 mg , Restasis, Plaquenil, Low dose Prednisone (2-3 mg daily) Xylimelt, Citrucel, Alcon-Naturale, Tears,Omega 3, Vit.D, Caltrate+D3, Fosamax, CoQ10, Zinc, Oxtellar. Levothyroxene

SunshineDaydream

cccourt, when I found Restasis to be helpful but insufficient, my ophthalmologist recommended taking both Restasis and Xildra twice a day each and waiting about 15 minutes between application of the two types of drops.
Sjogren's, lupus, OAB and osteopenia
Rx: Evoxac and Myrbetriq
Vitamins and Supplements: A, B complex, C, D3, E, calcium orotate, magnesium glycinate, D-Mannose, curcumin, fish oil, probiotic