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My fabulous news!

Started by MAT51, October 01, 2016, 08:50:00 AM

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MAT51

October 01, 2016, 08:50:00 AM Last Edit: October 01, 2016, 08:52:24 AM by MAT51
For anyone who is interested my brain MRI showed no progression of small vessel disease in 18 months (exactly same imaging as last one) and my CT was "of no cause for concern" - letter of explanation/ confirmation about CT still to come. Chuffed to bits with this news as I'm just struggling to get to grips with change of diagnosis from RA to primary SS. Reading Wallace's the Sjogren's Book and, despite this 4th edition going back to 2012 - I'm finding so much in there I can relate to already.

I did want to ask about neuropathic sicca and itch. But will just leave it at this for now!
Hashimoto's, seronegative RA, Primary Sjogren's, small fibre nld polyneuropathy, hypertension, IBS-C, GORD, BMS, highly allergic disposition!

warmwaters

#1
October 01, 2016, 01:06:09 PM
Congrats!   It's great to be able to scratch a worry off the list.
Primary Sjogrens, dx June 2009, Immunoglobulin deficiency, axial spondylosis arthritis, IBS, autonomic neuropathy
Omeprazone DR 40 mg, mobic 15 mg, Plaquenil, LDN, B1, B6, B12, D, fludrocortisone, gralise, various inhalers

MAT51

#2
October 01, 2016, 02:48:03 PM
Yes thanks that's it exactly - for the time being anyway!
Hashimoto's, seronegative RA, Primary Sjogren's, small fibre nld polyneuropathy, hypertension, IBS-C, GORD, BMS, highly allergic disposition!

SjoGirl

#3
October 01, 2016, 04:32:59 PM
How wonderful!!!  :)
Raynauds, sero-negative RA, Primary SjS, osteopenia, degenerative disc disease, disc protrusions,stenosis, Carpal tunnel,  poly neuropathy, myoclonus, hiatal hernia, esophagitis, viral infection, Leukopenia. Restasis, Vitamin D, B12, Evoxac, Lanzoprezole, calcium acetaminophen.

nannysbaby

#4
October 01, 2016, 05:18:27 PM
Good news!
Primary Sjogren's, Fibromyalgia, RLS; Methotrexate, Hydroxychloroquine, Vitamin Supp., Thera Tears

anita

#5
October 01, 2016, 07:21:21 PM
Great news!!

I just replied to your NT thread and asked about the CT...I should have checked here first.  Oh well.   LOL

52 yr old SjS, APS w/strokes, Autonomic Neuropathy, PN, Nephrogenic DI, (CVID) IgG def., Cushing's, Asthma, Gastroparesis.  Sero-neg w/+ lip biopsy.  Meds: IVIG & pre-meds, Arixtra, Aspirin, Plaquenil, Cardizem, Toprol XL, Domperidone, Nexium, Midodrine, Symbicort, Fentanyl, Percocet, Zofran

MAT51

#6
October 02, 2016, 12:18:29 AM
Ha ha well having just relocated to our old home I'm all sixes and sevens Anita,  but I replied and also responded to your PM. I should add that the UK SS charity have a good helpline and they will advise me on SS specialists if I feel that I am not getting the help I need. I believe the closest specialist centre is in Newcastle in England but I am hopeful that rheumatology in my new hospital (a day's travel away just now but hey ho!) has a good reputation so I won't jump the gun until I got a brick wall!
Hashimoto's, seronegative RA, Primary Sjogren's, small fibre nld polyneuropathy, hypertension, IBS-C, GORD, BMS, highly allergic disposition!

Kathy57

#7
October 02, 2016, 03:50:34 PM
Congratulations on your good news👏👏

Kathy
66 yr old female - Diagnosed Sjogrens Aug. 1st 2014.  Plaqinil, Evoxac, Prevacid, Lexapro, Hypothyroid, Esophagel Reflux, Gastritis, Barretts Esophagus, failed sinus surgery with 3 nasal septal perforations, Chronic Bronchitis, Asthma, albuterol, Breztri,  Osteoporosis,

irish

#8
October 03, 2016, 09:03:13 PM
Great for you to have good news. Sometimes we wait a long time for a break. Irish
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