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Gabapentin Anyone?

Started by SjoGirl, August 11, 2016, 12:58:44 PM

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Carolina

Thanks Anita,  I had thought that it would achieve the lower levels quickly, but then my doctor seemed to think the effect would linger longer as I tapered.  He's been wrong before, tho' he is quite brilliant.  Even the brilliant people are sometimes wrong.

At 1800mg, I have the sunburn effect, and leg pain, which I didn't have at the higher dosage.  However, I have had three episodes of myoclonus during the taper, the last one was three days ago.

So, I have no idea what is going on.  First I am stabilizing at 1800mg until after I have my synovial cyst treatment on the 25th.  Then once that event has passed I will taper further to 0 to truly know if the Gabapentin is a problem.

I am really having a hard time since I am so clumsy with my braces and walker and have very difficult pain if I stand or walk for more than one minute.  So cannot do anything beyond basic self care at the present.  I do NOT like the way my husband does things in the house (dishes, cooking!, cleaning) but must accept it of course.

If the taper doesn't stop the myoclonus my neurologist will conduct a long term EEG, wiring me up to a portable device with a button I push when I have an episode of myoclonus.  The whole thing is depressing me.   I see a therapist every week,  I take Cymbalta, I try to meditate and accept myself as being where I'm supposed to be.

Certainly struggling as I am more and more housebound and now dealing with pain again.   

Regards,  Elaine



Female-Elaine,83-CVID-pSJS-WMD (Eylea)-COPD-Inter. Cys-PN-CAD-Osteoarth-SFN-Erythromelalgia-SIBO-PMR-Adrenal Insufficiency-Hearing Loss-Achalasia-Bacteriurea-Power Chair-IVIG Gamunex 50 gm-Medrol-Wellbutrin-Buspar-Gabapentin-Atenolol-Salagen-LDN-Lipitor-Premarin-Nexium-Om.3-Repatha-KLOR-CON-Maxide

anita

I understand your having a hard time dealing with this.  I've had rough times that got me down as well over the years.  But I must say you are one of the strongest and most resilient person i know!  You have overcome so much in recent years and always with a great attitude!  Take this as you do everything else...one day at a time.

Keep us posted, Dear!
52 yr old SjS, APS w/strokes, Autonomic Neuropathy, PN, Nephrogenic DI, (CVID) IgG def., Cushing's, Asthma, Gastroparesis.  Sero-neg w/+ lip biopsy.  Meds: IVIG & pre-meds, Arixtra, Aspirin, Plaquenil, Cardizem, Toprol XL, Domperidone, Nexium, Midodrine, Symbicort, Fentanyl, Percocet, Zofran