M.kansasii lung infection confirmed

[irish]

I was not "sick" when I was diagnosed with the kansasii but I did have MRSA when I was seen and had a cat scan of the neck checking for abscess in throat. The scan was low enough that it picked up the top of my upper lobes which showed some tubercles. Docs called me and said to stop my Methotrexate and get up there ASAP. Had chest and lung scan which showed tubercles in lunges, liver and spleen. The treatment was listed as 18 months but I was able to stop in 12 months per repeated scans and sputums.

I have to admit that I was not sick when I was on the meds other than the upset of thyroid med from the rifampin. I happened to be on 26 meds at the time. All I did was take meds cause I had anemia and some other stuff at the same time. A crazy experience I will say. I didn't have sweats or fever or anything. Turns out that soon after I finished all the tb meds I saw immunologist and was diagnosed with severely low t-cells. Well, people who are immunocompromised are high risk for these mycobacteria infections. Irish

[Tharrell]

Hi Deb, yes copd and any other lung condition as well as beeing immune compromised sets you up. I have been very sick for a good while now and am hoping that knocking the m.kansasii out will fix almost if not all of it. My weight is stable at a 117.7 lb yet I continue to loose bulk! I look positively anorexic! I have severe night sweats, so I hope those will be gone after treatment as well. One day at a time!
Today the fatigue from the meds hit me like a brick wall! I thought I had profound fatigue before, but this is a whole new level!