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It's been a while...Hi from Sass

Started by sass, April 06, 2016, 04:50:27 PM

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sass

Just wanted to check in with everyone.  I have not been around it quite some time.  Still hanging in there...in spite of a lot of new things.  How many of you are on IVIG infusions?  Or have multiple muscle and nerve diseases?  They have added a bunch to my ongoing list.  Well, hoping someone may remember me and that all of you are doing well.
~Sass~  <3

Sleepy In Seattle

Nice to hear from you...welcome back!!!! I hope you are doing well, despite your new diagnoses/treatments.  :)
Sjogren's, Lupus, Raynaud's, APS
Fatigue, Brain Fog, Autoimmune Hearing Loss, joint/muscle pain, dry mouth, clots in retina, etc
GF, "semi-Paleo" diet, Supplements, Plaquenil 400mg/day, Aspirin 325mg/day (for APS), Methotrexate 7mg/2x per week, Prednisone 3.5mg/day

Joe S.

Welcome back. I hope you are managing well.
bkn C4 & C5, herniation's 7 n, 5 t, 4 l, Nerve Damage
Lisinopril, Amlodipine, Pantoprazole, Metformin, Furosemide, Glimepiride,
Centrum Silver, Cinnamon, Magnesium, Flaxseed, Inositol, D3, ALA, ALC, Aleve, cistanche
Reiki, reflexology, meditation, electro-herbalism

SjoDry

Hey Sass.

Welcome Back. I am on Sub-Q infusions every other weekend. Mine are for CVID, a severe immune deficiency. Others on the site here, are having infusions for Neuropathy.

Another day, another diagnosis, huh. Maddening.

Hope you are up to sticking around.
Take Care.

SjoDry

irish

Hi Sass, It has been a long time. I have forgotten what your ailments are but know they were many and bothersome. I am still on my IVIG 80 grams once a month going on 10 years. Also just found out that besides my 4 autoimmune diseases and the severely low t-cells I also have a low IgG level. I don't know why I didn't pick up on that earlier. We just keep on adding diagnoses to our list, don't we. Take care and hope things are going well. Irish

CMNK12

Hello sass,
Who could forget you? Welcome back! So glad to hear from you, and glad you came back. I am not on IVIG, but some of the others are. You have been in my prayers and in my thoughts. I hope you are doing okay despite all of the diagnosis you have. Take care. CK

eija

Hi :)

I was a newbie when you left but I've often wondered how you're doing. Just this week, even!
Great to have you back!
Female, 52, in Finland
Sjögren's, fibromyalgia, Hashimoto, depression, migraines, pressure urticaria, mild Raynaud's, MCS...
Cymbalta, Tyroxin, Oftagel drops