Midnight poem

[Bigleyj]

Hi all,
Last nigh when I was unable to fall asleep I wrote this poem and thought I'd share. I hope it doesn't offend anyone, it's a bit sarcastic but hopefully a little humorous as well.
Cheers,
Jo.

Pain, pain go away
Don't bother coming back another day
As if, oh well, I'll say it anyway!

The doctor he said 'it's ok you're not crazy'
You are sick, yes you are, it's not being lazy
To get this diagnosis it took eight months long
It was a relief to find out what was wrong

Sj?gren's syndrome, sounds kinda odd
An autoimmune disease - well what a sod!

I try to explain but I can't get it right
The dryness and fatigue, but I have trouble sleeping at night
At times my joints ache, especially my knees
The brain fog, a gurgling stomach, hear my pain please
Now and then a strange ringing in my ears
Tingling and headaches, this disease brings out many fears

My teeth aren't so great since the dryness set in
I was frightened of eating and I got so thin
Valium has helped me with that
Now I just don't worry, doesn't matter if I get fat!

I work just as hard as I possibly can
Spend time with family, especially my man
I'm so proud of my son, he's handling this well
When I'm flat out on the couch, his smile shows he can tell
That I'm just too tired to chat, he'll leave me to nap for a spell
I'm lucky my friends are supportive and kind
They listen to me whinging and don't mind when I whine

Most nights I'm in bed by eight or nine
Just can't do any more, I know when it's time
I may not sleep, just rest instead
In my comfy and warm bed

At least now the fatigue isn't quite so bad
Because the medication has helped, also I don't feel so sad
I used to get up and beg my body to get through the day
Now I have a shower, get dressed and think 'hey'
I might just make it through work today!

If I don't eat my cereal every day
It's through the rear end that I will pay!
Dairy isn't good, I know it's a fact
But I love chocolate and ice cream
I'll just put up with feeling smacked

Others ask me 'are you ok'
I think 'how can I explain what I feel today'
My body is sick and I don't feel well
I say 'I'm alright', I know they can't tell

Not all days are bad, some are so-so
And on days when I feel good I want to go
Out to the shops, a movie or lunch
Or maybe all three with my honeybunch

I never know how much energy I'll have
But after four day of work I know where I'll be
In bed for two days ... Recovery!
So on Sunday most weeks I can enjoy some good things in life
Time together, just husband and wife

I can confirm that the spoon theory is really true
Need to make good choices in what I do
Remember not to push myself too hard today
Otherwise, tomorrow I'll pay

The tablets and devices are quite good
They make me feel a bit like I should
But the cure is not here yet for this disease
I pray for it every day - yes please

As they say 'it could be worse'
I know they are right, silly me - yes of course!
I could have cancer that's what they say
Foolish words, this could happen one day
Do they think this makes me feel better quick
I should be rejoicing then because I'm not really that sick!

My moods they swing, up and down
Life really is like a merry-go-round
I feel blessed and betrayed at the same time
Yes, yes you are right I'll be just fine
I'm trying hard to get used to the new me
I just wish I was how I used to be

Don't think for a minute that I want any pity
Just understand, everything's an effort, even a trip to the city
My body can't cope with too much activity
When I've had enough I have to look after me

Looks like i could go on and on for ages
I might well fill up many pages
But I think I'll stop here and take a rest
So tomorrow I might just be at my very best!

[Liz D.]

Love it!

[susanep]

Jo, that was a wonderful poem. I smiled, chuckled, and could feel sometimes the sadness, pain, but also the hope, and restart of each new day. 

If you write anymore, I would love to read them. I love poetry too. I  write some to my hubby. 

Hugs,
susanep

[Bigleyj]

Thanks for the feedback, I'm so glad you liked it - you have both made my day

Jo.

[MarieB]

So many truths!  Thank you for sharing this.  Very good!