Is Anyone Positive for SSB antibodies without SSA?

[babsy123]

Howdy,

I am SSB positive and my ANA has come up one time positive and every other time negative. The highest my SSB ever got was 1.8 with 8 being the highest. I have a double DX of Sjogrens and Sarcoidosis.

Confusing heh? Sarcoidosis is an exclusion for Sjogrens so it is somewhat rare to have both.

[Kathy57]

So far all my blood work has come back negative but I have all the symptoms and ophthalmologist agreed with my rheumatologist that I had Sjogrens.  I had no salivary function at the time and an oral maxcilofacial Dr confirmed that.  The fatigue was overwhelming and I desperately tried to keep working but it was so bad I couldn't function.  The rheumatologist took pity on me and treated me with plaquenil and evoxac and after what seemed like forever, I feel much better.  I cringe to think what I would be like still not being treated. 

It scares me that the blood tests are so finicky and unreliable.  What do u believe?  All I know is that I feel so much better and I don't want to "go back."  I pity all who have been denied treatment because of what seems to me to be "bogus" blood results.

[Pbrain]

Reviving an old thread but the subject is exactly my question so I'll add to it anyway. Me! Just had another blood test re-confirm that I'm positive for SSb (>8 last time; 7.4 last week) and negative for SSa. I have very very dry eyes, v dry mouth (worsening, for sure). I don't have painful joints at all; only "creakiness"/stiffness in my Achilles and back first thing in the morning. Maybe achy joints are related to SSa?

[Tharrell]

Hi pbrain, i'm ss-b only as well, but I also have anti rnp. I don't know the answer to your question, but my joints burt as heck. I'm not sure what the prognosis or disease course is if you just have one and not the other. Be interesting if someone has some insight to that.