?'s

[Crystal31]

Went to Johns Hopkins and saw a neurologist at bayview. He thinks based upon my blood work and symptoms that I don't have sjogrens but that I have lupus. He wants me to start on plaquenil. Has anyone had bad side effects with this medicine? I'm actually quite scared but am trying to stay strong. Now I just need to find myself a good rheumetologist that's local. Is there a lupus page like there is for sjogrens?

[Jasper]

I have been on Plaquenil since Sept. 2013. I have had no noticeable side effects from it. I seem to tolerate it very well. Physically and mentally I feel considerably better than I did prior to taking the Plaquenil.

I don't know of a Lupus forum but others on the forum may know of one.

I do hope the Plaquenil helps you (if you decide to take it).

[Carolina]

Dearest Crystal,

There is always a group for everything.

But I'm not finding a good support group for Lupus like this one on first trying.

I'll try again.

This might work:

http://messageboards.lupus.org

and another:

http://www.lifewithlupus.org

But I don't know, Crystal.

You can also ask your questions here.

Hugs, Elaine

[Joe S.]

I recommend that people check for counter indications, interactions and side effects. I had a bad reaction to plaq but that is not normal. There was a post of a recent study that indicated for our illness it was no better than a placebo. Iwould perfer to see more studies with the same results before accepting this answer. Many people swear by this med.

[wildforwater]

Plaquenil has me tremendously.  On it for four months now and have had zero side effects.  Hope it works for you as well.

Maria