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Do I have lupus too?

Started by lighthouse33, May 04, 2014, 05:24:30 AM

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Tivia

I wonder this also, my rheumy flips back and forth on the lupus though so I dont know. I assume I dont because I can go out in the sun and stand around with no sunscreen on and just get a tan or a slight reddening. I dont get sick from the light, but I get heatsick from the heat very fast. To me I thought if you had lupus the sun would make you rash and get sick. I think I get heatsick from some kind of temperature disregulation maybe related to sjs or poss sclero. My body temps range from 95.9 to 97.6, I havent had a so called normal temp in at least 2 years.

Also if you have lupus and you put your face to the sun dont you get the butterfly rash? My face gets reddish but its pretty uniform, I just consider it a slight sunburn.

Madison Granny

I tested positive for both Sjogren's and Lupus.  But because of my extreme dryness my Rheumy says I had primary Sjogren's.  Later he said since both were treated pretty much the same he only diagnosed one.  So I have taken that to mean that I have both.  I have symptoms of both.  I'm very sun sensitive and do develop a rash if I don't have enough sunscreen on and have Chronic Kidney Disease which means lupus and all the dryness associated with Sjogren's.  I've finally come to the conclusion that it doesn't really matter which ones I have since if you have one you usually have other Autoimmune illness.
Primary SJS, dRTA, Osteroporis, OAB, stage 3 kidney disease, hypothyroid and high blood pressure.  Medicine I take are plaquenil, bicarb, prolia, synthroid, toprol and amolipine, citracal and vitamin D.  I use Arex and Azasite and Prolia.  I also have Reynaud's and osteoarthris of the toes