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Teeth and News interview!

Started by Ripvanann, May 01, 2014, 05:59:50 AM

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sassygal

#15
May 01, 2014, 06:10:40 PM
Andrea,
Great news! We all knew you would do wonderfully. Thank you for having the courage to do that and slip in the Sjogren's.

I am so happy you love your dentures! Finally something to really SMILE about. Make sure you keep flashin' those pearly gems around... a long time coming!

Can't wait to see the link!

Gail

LucyD

#16
May 01, 2014, 06:14:50 PM
Andrea,
I bet you were fantastic. Happy for you. You have been through heck!
Love,
LucyD
Dxs: Sjogren's - seronegative, UCTD, soft tissue joint pain, Hypothyroidism
Medications: Plaquenil 400 mg/day, Restasis, Synthroid, Cytomel, Celexa, Deplin (L-methylfolate) (for MTHFR genetic defect)
Age: 65

Ripvanann

#17
May 01, 2014, 07:09:36 PM
You guys are AWESOME!! Thank you!!
Primary SjS, Steroid Induced Cushing's Syndrome, RA, Thyroiditis, Hyperparathyroidism, Raynaud's, Autonomic & Small Fiber NLeuropathy, Fibro. Osteoporosis, & other fun stuff associated w/ the afore mentioned. ~Meds: prednisone, Plaqu, Citracal D & Pain Meds, Compazine, phenergan, Iberogast.

ohiolady

#18
May 01, 2014, 07:20:17 PM
So happy for you!  What a relief to have this behind you.  Bet you look gorgeous!

How is your gastroparesis?  Did you start Domperidone?  Hope you are doing better.

Anna
SJS  Hashimoto's   Mild Raynauds  GERD  Gastroparesis
Restasis, Evoxac, Dexilant,  Domperidone, Zofran and Synthroid. Fish Oil, Vit D and B12  R lipoic acid,  Acetyl L Cartnine, Vitamin B1, and The Perfect Food Green and Fruit supplement

Kidney Cancer Survivor   
Female   Age: 62

machenza

#19
May 02, 2014, 04:25:20 AM
Quote from: cccourt1942 on May 01, 2014, 06:20:26 AM
Andrea...don't know why I am compelled to say this to you..as I know you will...but say Sjogren's Syndrome every other statement.   ;)

My thought exactly. There are only less than a million people with things like Parkinson (not that it is to be undermined) but we are north of 4 million, and perhaps that many with "idiopathic" sicca and potential members of the Sjo club, and yet no one knows what it is n the public eye...There is NO bad publicity after all

Nellie

cccourt1942

#20
May 02, 2014, 06:11:39 AM
The really great part of this story is ...Andrea has teeth!  Let's remember her posts over the months..and her journey.  THEN..all the great parts of THIS thread!  Makes it worth it to us!  Remember...Andrea did the suffering for this beautiful culmination!!!
Sjogren's, Psoriasis, Hashimoto's, Osteoporosis, Osteoarthritis, Cold hands/feet,  fatigue,  pilocarpine-25 mg , Restasis, Plaquenil, Low dose Prednisone (2-3 mg daily) Xylimelt, Citrucel, Alcon-Naturale, Tears,Omega 3, Vit.D, Caltrate+D3, Fosamax, CoQ10, Zinc, Oxtellar. Levothyroxene

Velcro

#21
May 02, 2014, 10:15:01 AM
Just catching up!  That's awesome!  I can't wait to see it...I know you rocked it!

quietdynamics

#22
May 02, 2014, 01:16:36 PM
Quote from: cccourt1942 on May 02, 2014, 06:11:39 AM
The really great part of this story is ...Andrea has teeth!  Let's remember her posts over the months..and her journey.  THEN..all the great parts of THIS thread!  Makes it worth it to us!  Remember...Andrea did the suffering for this beautiful culmination!!!

AND..." Also gave me a $25.00 gift card to Panera for today!" .. to chomp with.. ;)
Sjogrens ANA 1:640; SS-A/B+; Fibro; IBS; Neuro symptoms,Thyroid Anti-bodies; Ocular Rosacea, Livedo reticularis,

"You can't have a positive life with a  negative mind"

Ripvanann

#23
May 03, 2014, 03:09:08 PM
You guys are really too knid to this old hag. Thank you!

Ohio, gastroparesis is status quo. No meds yet  other than compazine for nausea.  I did a prednisone boost the day I
we filmed and all of the nausea was gone. Can't go up on it. So hoping that the IVIG will help. Meanwhile upper GI scope found inflammation somewhere in my duodenum. Report says it's from SjS,  but celiac can be the cause of this type of inflammation as well.  Been gluten free for a few days and it does seem to be helping. Thank you lady!

CC, you are too sweet! It does feel SOOOO... good to have some positive change! Thank you so much for even remember what I have going on. =)

The rest of you rock as usual! THANK YOU!
Primary SjS, Steroid Induced Cushing's Syndrome, RA, Thyroiditis, Hyperparathyroidism, Raynaud's, Autonomic & Small Fiber NLeuropathy, Fibro. Osteoporosis, & other fun stuff associated w/ the afore mentioned. ~Meds: prednisone, Plaqu, Citracal D & Pain Meds, Compazine, phenergan, Iberogast.
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