Ladies issues

[Cindy]

So I changed eye docs because the one I had wasnt doing all the plaquenil tests. I went today and the girl thats checks you with me before seeing the doc was really nine. She started asking me the usual questions and then a minute later she says "you know I have sjogrens and lupus" how cool is to meet in person somebody like you.  We talked and talked. She has a baby and a toddler.  Now.. I didnt like the doc, I asked for a day off to go there, gyn, and take care of my mom and he is making me go back in 3 weeks for plaquenil testing.

Gyn visit. I been having vaginal burning sensations for a few weeks. Is really strange because if Im walking I dont  feel anything but if I seat for more than 20 min the burning starts. Theres no infection, I was thinking of vulvodynia. I told him and he said that in 15 years he has seen only 2 patients with vulvonya.  Joking he said that thanks to me he has to read the books to learn about sjogrens. At least he is trying. I have a trip in 2 weeks and am afraid of sitting on a plane for more than 20 min. Has anyone experienced this or am alone on this one.

[Myshkin]

Very common. It's also salivary tissue down there, so you're pretty much experiencing the same there as in the mouth or stomach.

I have it, and it suchs. It was actually my first big symptom, before the eyes or anything. I use vaginal suppositories with hyaluronic acid (formulated for vaginal dryness - there are different brands). Replens is also an option, but I prefer the others. And be very gentle with personal hygiene.

And I use the principles described here: http://www.mydr.com.au/womens-health/vulval-problems-a-self-help-guide

Helpes tremendously. Especially quitting the douche.

Steroid creams also work if it gets bad