question for the guys?

[acer 455]

     I know that a lot more women then men get sjs but for the men who are lucky to get this diease(joking of course) Im dealing with erectial dysfuction and im only  42 years old and my problem only happen after symptoms of sjs! Just want to know if any of the men out there have this or maybe the women know of another man dealing with this ?  thanks for any advise! I know this is a TMI question but i feel that were all adults!

[reesatay]

Are you on any new meds since your sj dx?  It could be related to medication side effects? 

[stillinshockwithsjogrens]

I am female, but if you are experiencing any anxiety or depression over this darn disease, it would affect performance (male OR female)!

[Joe S.]

One article suggested a drop in testosterone for Sjogren's patients. I just think of it as "it" syndrome. I was bathing in Androgel with no positive effects. Talk to your doctor it could be anything.

[quietdynamics]

I did see mention in a research study of 'some' men experiencing erectile dysfunction.
You had posted about urination problems before. Have you gone to a Urologist? with the information about SJS? which would be an area of investigation?
http://www.mayoclinic.com/health/autonomic-neuropathy/DS00544/METHOD=print

You are in NYC area there are so many great medical institutions there. I really would not bother with local Drs. Go to a SJS knowledgeable med, not all Rhuems are alike, get an accurate, thorough work-up and they will set the treatment protocol that your local Dr. will follow.  Your local Dr. will probably be relieved. Why dig in the sand with a spoon?, when you have bulldozers at hand?

So many here, as you can read do not have this luxury. 

[lolo1979]

Acer,
I am female, but I feel I have my own female version of ED to an extent. I feel less sensation down there than I used to, and it is especially obvious / worse first thing in the morning. It is much like my other symptoms, where my eyes and mouth are dryer in the morning and then seem to "wake up" as I go about my day.

Do you notice yours being worse in the morning?

I say this almost every other time I post, but I seems obvious to me that sjs is absolutely a nerve mediated disease...almost all of us have symptoms of nerve problems, and there is a ton of research to back this up.  Google "sjogrens m3 receptor antibodies". You'll see why it's no surprise that we have the issues we do.