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just diagnosed with sjogrens

Started by bratt, August 21, 2012, 07:29:29 PM

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Scottietottie

#15
August 26, 2012, 05:00:17 PM
Hi Bratt  :)

Welcome to Sjogren's world.

You say your rheumy has put you on Plaquenil. Did he tell you to 'taper' on to it or did he just say to go onto the full dose straight away?

I was told to 'taper'. I was told to take half a tablet every other day for a week and then to take 200mg every other day for a week. After that 200mg one day and half a tablet the following day and on like that until I built up to the full dose.

Also - always take it with food.

I hope you find the site useful. It's certainly friendly and supportive.

Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
https://kiwiirc.com/client/irc.dal.net  (way to chat + nickname and #Sjogrensworld)


Never do tomorrow what you can put off till the day after tomorrow!

caseybluemax

#16
August 28, 2012, 07:07:08 PM
My husband wanted me to get a support group for this 'not-so-wonderful' thing that I have just found out I have. At least I know I'm not alone! Besides being so tired all the time (which no one wants to hear) - it's the constant thirst! I just began Plaquenil (which my stomach does NOT like!). I am going to take an Immodium tonight at bedtime - might help?
Today is my 69th b'day, so I guess I'm blessed in being older before coming down with this, but it sure ain't easy.
I would love advice, encouragement, what works and what doesn't -
What about Energy Drinks?
Thanks - Gayle

lynnmarie219

#17
August 28, 2012, 07:34:34 PM
Hi Gayle!

Happy Birthday and Welcome to Sjogrens World!

I would like to suggest that you start your very own new thread under this section so that more people will see it and get to know you! This is a great place to come and learn that you are not alone in all of this.

Please read all you can here to learn about sjogrens and how to deal with the different symptoms of it and if needed you can use the search feature at the top of the page when you are looking for something in particular.

Gayle

#18
August 29, 2012, 03:20:10 AM
Hi Gayle,

Welcome and I am glad you found us! Nice your husband wants you to be with a support group! Smart man! You should probably ask the Dr about taking immodium. Constipation is such a problem with SJS too...
Welcome!

Gayle

eyeamdry

#19
August 29, 2012, 10:32:57 PM
Gayle-I would not do energy drinks unless your doc oki's it.  I do caffeine in soda and do too much but i am afraid of those "energy" drinks.  We are similar in age and you should ask your doc first.  It may be fine, but I'm always afraid of these things causing a heart attack.  Lucfy
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