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Losing hair during flares

Started by MissyLouWho?, July 21, 2012, 07:21:05 AM

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MissyLouWho?

I'm wondering if anyone else notices a pattern of their hair falling out during flares?  Before I got my symptoms under control I lost a ton of hair every day.  Started plaquenil and the same week I started feeling more energy I noticed I also stopped losing my hair.  Now that I am flaring, I noticed it's falling out in handfuls again.  I wonder if they are just coincidental or connected.

Anyone else notice this?

mshistory

I've lost so much hair. It's just constant. It has gone through a few periods of less fall out, but has never completely stopped. It definitely gets worse with a flare. I sure wish I could stop it!
SLE and SjS with PN. ANA >1:1280 speckled,
SS-A >8.0, RF positive. Botox for migraines, Clonazepam, Zoloft, Imitrex for migraines, CellCept 1000 mg, Plaquenil 200 mg, Restasis, Zofran for nausea, Gabapentin, Evoxac and Norco for pain.

CAT1962

I just posted elsewhere about this. My hair is thinning bad. My family tells me ',"Only you notice it..."...Trying to to be nice, I am sure ...lol...EVERYTIME I talk to someone they are looking at the top of my head.  :'(

I am in theprocess of getting a new Rheumy...mine shrugged and said,  " No. Your thinning is from heredity....SS doesn't 't do that."...HELLO!!?? Yes it does.