Parotid U/S & biopsy

[gurs]

Hope everything comes out ok...Sjogren's seem to cause alot of wierd inflammatory responses, especially in our gland/lymph nodes it seems.
Most of the time, it will be inflammatory..just look at our parotid glands? mine uses to swell the size of oranges..no lie!

My cousins doctors decided to dig in in lymph nodes because they thought she had cancer, turns out, some inflammatory response, which Im guessing she has autoimmune issues just like the other gals in our family. She went through alot of pain and discomfort, and took her long to heal.

Some doctors dont seem to have a clue either and freak patients out. They also seem to think they have infections, which they then
give repeated antibiotics too, which wont help and just make everything worse.

Again, hope you have good news.

Gursie

[anita]

Cricket, Just a couple more questions and I won't bother you any more.

Would you mind sharing your results of the CT, MRI & bone marrow biopsy?  Did they find other swollen lymph nodes or problems associated with this?

I'm also curious if you experienced pain in your parotids or other new symptoms that you now know are related?  I have had some aching type pain for months in the parotids but nothing too bad.  Same for the annoying swollen lymph nodes under the jaw.  I've also had increased fatigue and joint pain,  but just figured it was from a flare or progression.

I really appreciate all your input.

[Cricket]

CT scan showed something in parotid gland, results of biopsy was a lymphoma tumor large

MRI showed lymphoma in the orbital opening on left side

BMB did not get results, I think this Tuesday.

You can ask anything anytime, many times if necessary, more than happy to help.
Cricket

[anita]

Do you have any other symptoms other then the parotid...like other swollen lymph nodes in arm pits, groin, chest, etc or other new symptoms?

[Cricket]

I had a cysts taken out by my eye, but no swollen lymph nodes or other symptoms.

[Belsey1]

Anita and Cricket, wishing you both the best in this latest Sjogren's curveball.  I clicked on this thread because I have been having left jaw pain the past few days and now pain has spread to my neck and my right jaw.  It all just feels so tight and hurts to turn my head.  The jaw pain hurts when opening and closing my mouth and when eating.  I just wondered if that is similar to pain either of you had.  I can't really tell if any swelling has occurred.

Thinking of you both.

[anita]

My pain has just been subtle and swelling relatively minor, but both has been continuous.  It doesn't hurt to turn my head.  It's more of an ache with increases in pain now & then.

Thanks for the well wishes from you and everyone else that's posts.  I will keep everyone up to date as I get through these tests...hopefully with good results.

[musstang4u]

Hi all and I'm sorry you are going through this stuff... I'm new to it and a little scared. I've had swollen parotids for years... I thought I had stones or something, but my ENT said no that I have SS. What worries me is this lymphoma talk. What can they do for lymphoma?

[Cricket]

I am new to lymphoma, just got dx June 8th.  Mine will require chemo which I think I will start soon, I see the dr on Tuesday now that all the tests are done.  It has been a long 2 months.

I would suggest an MRI that is what showed mine.  I will be praying you don't have it.
Cricket

[lostone]

A whirlwind of ENT visits and MRIS the past two weeks,, lost 70% hearing in left ear,, no fluid behind ear, MRI for that, showed pretty much normal, ?, then MRI on cervical  spine, two herniated disc and more bone spurs, guess thats why my arms have been going numb, another round of blood work, by ENT,, still neg for SS,, ANA still neg, all bloods normal,, so whoknows,, now to paratoid glands, there shot,, they have atrophied, and prob will have to come out, sinuses are a mess again,, eating has become a chore insted of a joy, I dont like gagging constantly on stuff from teh sinusses and salivary glands,, I made it clear they are going to do something and no more of this we cant do nything for you,, last visit I took cracker and made him watch me eat one to see what happens afterwards, I dont think he appreciated a sink full of goo,, I hope everyone is having a good weekend,