Quitting Plaquenil Take Two

[gurs]

I think we are all looking for that miracle drug..the one that helps with the dryness, joint pain, fatigue...everything. Ive learned that most of them, including plaquenil, are really more of a preventative..I learned the hard way quitting plaquenil..months later, everything blew up including all my CNS symptoms and I never recovered. We dont have many options in terms of medications, and all of them have side effects in some way. For those who can tolerate plaquenil, I would stay on it. We have NO idea what is going on in our bodies, even though we may feel well enough to function, we have no clue on the damage that is going on.

Also, many might want to try another manufacturer of plaquenil, as I had heard some of the generics dont work, and cause alot more side effects than others. If you can get the name brand, that is the best my Dr had said. But most of us cant afford that either?

Glad the imuran is working well so far....hang in there.

Gursie

[mshistory]

I agree, Gursie - all of these medications have side effects and risks, but it is scarier thinking of what our own bodies are doing to us without the medication!! I'm convinced my body just hates me. I don't know what I did to it to make it so ticked off at me! 

[gurs]

Yes, I dont like medications either and take alot of natural supplements to help lessen some of my symptoms, but they dont always work to modify the immune system either, so medications might be needed...in alot of our cases.

Yes, my body hates me too...flips out over everything that goes into it. Its like a hypersensivity thing. I think our bodies are responding to it and attacking it..like an allergy?

Gursie