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UPDATE.....major lupus flare......near death

Started by season, January 10, 2012, 10:15:11 PM

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season

Thanks so much everyone for your kindness. I feel the love and concern you all have from your caring words. This is so hard to face.

I wanted to connect with her in some way today, so I chatted about all the things that she loved and I sang to her. I remember the little girl that she was several years ago. I don't think I ever saw her sad-----she greeted everyone with a bright happy face. As she got older, she was full of compassion for everyone.

Now, her parents are asking all the "why's". But there is no answer.


SjoDry

Dear Season,

I am so sorry to hear about this very sad situation.  Disease & Death are such intruders into our lives. It is difficult to understand.  And even more difficult to handle the pain of it all. My thoughts and prayers are with you all during this heart-wrenching time.   

susanep

This is such sad news. I am so sorry to hear this. Everyone is in my prayers.

susanep
Sjogren's, Lupus, Rheumatoid Arthritis, Hypothyroid, Fibro, Sleep Apnea, Diabetes 2, Asthma, and Gerd.  (Meds I take) Omeprazole, Pilocarpine, Levothyroxine, Effexor, Cpap, Aspirin, Mobic, Prilosec,, Xanax, Restasis, Systane,Vitamin D3, Plaquenil, Gabapentin, Provigil , Advair, Nasonex, and Proventi

jazzlover

Prayers for you and your family!!

How old is your beloved niece?
Mast Cell Activation Syndrome (MCAS), Salicylate Sensitivity,  Interstitial Cystitis,  gluten intolerance, Raynaud's, Sjogren's, A-fib; cytomegalovirus, mycoplasma,  recovered from Lyme disease

eyeamdry

Season, you and your whole family have my sympathy for your niece's bad sickness.  Not fair at all.  Lucy

Doxie

season, You, your niece and family are all dealing with so very much right now. I am so sorry that this illness has turned so lethal and is causing so much grief.

I'm praying for y'all, and I hope that a blanket of comfort will help everyone through this difficult time.