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It's official...

Started by amberjolie1, January 11, 2012, 07:45:45 PM

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amberjolie1

January 11, 2012, 07:45:45 PM
The skin biopsy came in yesterday, and it is "compatible with scleroderma".  So if there was any doubt before, there isn't now.  So in addition to being a "sjoggie", I am now officially also a "sclerodermian".  (It sounds like I'm important or something... ;D)

I think the rheumatologist thinks it's the CREST, or limited, variety, because it came on relatively slow (while the diffuse kind can be extremely rapid).  However, I read that skin involvement with CREST is usually confined to face, arms and hands, and legs.  I definitely have skin involvement on my chest, and possibly my stomach.

I guess I'll just bring it up with him the next time I see him.

Joe S.

#1
January 11, 2012, 08:23:12 PM
I would like to say something humorous or encouraging but all that comes to mine is AI diseases bring their friends. I wish you success in manage them.
bkn C4 & C5, herniation's 7 n, 5 t, 4 l, Nerve Damage
Lisinopril, Amlodipine, Pantoprazole, Metformin, Furosemide, Glimepiride,
Centrum Silver, Cinnamon, Magnesium, Flaxseed, Inositol, D3, ALA, ALC, Aleve, cistanche
Reiki, reflexology, meditation, electro-herbalism

Patze

#2
January 12, 2012, 06:53:48 PM
I'm sorry to hear that Amberjolie, but I'm glad that you're finally getting some answers.

If it's CREST, has your rheumy said what treatment he will be prescribing for you?

Sending you some ( ( H U G S ) )  and hoping that the rest of the puzzle pieces fall into view soon.

Take care of yourself now....  And don't forget to keep us updated, okay?


Patze
Our home page  http://www.sjogrensworld.org/index.html
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Sero Negative Queen

KellyG999

#3
January 12, 2012, 07:42:16 PM
I am going to really show my age on this one; As Roseanne Roseanna Danna used to say "If it's not one thing, it's another." (70's Saturday Night Live)

Maybe it's no time to be funny. I am so sorry, just thought I'd lighten the mood. We're all tired of the crap that seems to follow Sjs. I have IBS with mine. LOADS of fun there.

Please seek good care and control and let us know how you are.

God bless.
KellyG

susanep

#4
January 12, 2012, 08:21:20 PM
I know you sure don't need something else, but if you have it, I am glad you know it. Now at least you can be proactive.  Please take care, and also yes keep us updated.

susanep :)
Sjogren's, Lupus, Rheumatoid Arthritis, Hypothyroid, Fibro, Sleep Apnea, Diabetes 2, Asthma, and Gerd.  (Meds I take) Omeprazole, Pilocarpine, Levothyroxine, Effexor, Cpap, Aspirin, Mobic, Prilosec,, Xanax, Restasis, Systane,Vitamin D3, Plaquenil, Gabapentin, Provigil , Advair, Nasonex, and Proventi

gurs

#5
January 13, 2012, 03:52:55 AM
Amberjolie1....

What kind of doc did your biopsy? just curious? my derm doesnt do those? how did they do it?

So sorry about your diagnoses...at least you know, and can look into treatments for this. My doc thinks I have some CREST activity going on too. I went to the John Hopkins scleroderma center about 6 years ago, and they said I didnt have it, but possibility of developing it.

Gursie
52 years old.Primary SS, Lupus, Raynauds, POTS, Hormone issues from Hyster-menopause, systemic candida,osteoporosis,Gastroparesis, chronic neuropathy, migraines, sinus/dental issues. selective immune def/low t-cells.
Prednisone & medrol , plaquenil, diflucan, bio-estrogen creams,many supplements

mshistory

#6
January 13, 2012, 05:04:39 AM
Like others have said, I'm sorry you have one more disease to deal with, but at least have an answer and can start treatment.

(((HUGS)))
SLE and SjS with PN. ANA >1:1280 speckled,
SS-A >8.0, RF positive. Botox for migraines, Clonazepam, Zoloft, Imitrex for migraines, CellCept 1000 mg, Plaquenil 200 mg, Restasis, Zofran for nausea, Gabapentin, Evoxac and Norco for pain.

Luna

#7
January 13, 2012, 06:06:00 PM
Ditto,,, I am sorry you have it, glad you now know.

Luna
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