Eating more or less

[Narablueeyes]

I've noticed in the last few months that I'm eating less than I used to.  Don't feel as hungry as I used to.  If my rheumy decides to put me on plaquinel next month, is this going to change?  I really don't want to start eating more.

[Pisces24]

Check out your current meds to see if any have the possible side effect of loss of appetite. I had a med one time (think an antibiotic) that did that to me. Dr about had a fit as my iron really dropped.  But 2 weeks off the medicine and it was up considerably.

I did not hit over 100 lbs until after college and I am 5 ft tall. I'm age 54 now and try to keep my wt 110-115 as dr wants but I do get close to 100 at times. Most of the time, I am just plain not hungry.  To maintain weight at times, for me it has been getting myself to eat even when I am not hungry at regular intervals.  To me seems like a waste of food to eat when I am not hungry but I have to do it.

So I know how you feel about not being hungry.  I've been this way a loooong time though and I don't think it is SJS related. Just the way I am.    But be sure to check out those meds. OK?

[KellyG999]

Hi Nara,

I haven't had a "healthy appetite" since Sjogrens really reared it's ugly head a year and a half ago. I went from 5'7" and muscular 138 lbs to 122 lbs and kind of skinny. During the 3 months I was on a Plaquenil trial, I ate even less because I had daily stomach problems while on it. I hope yuou do a lot better than me - I got no relief and even seemed worse. But my body chemistry is often very different from the general population.

Good luck and Merry Christmas!!
KellyG

[Luna]

I lost 15 pounds sinse june. That was when i was diagnosed and started Plaquinel. I changed my eating habits then also. My taste buds are messed up and most sweet foods taste nasty. Salty makes soars. So I think that may be it and not the meds. EIther way, I lost that it and was able to keep it off.  And I didnt go on any other meds till just last month. So, that was not it either.

Luna

[Kaila]

 I'm sorry that you are going through this. Since 2009  I've battled keeping my weight on. I fell below 100 lbs now I am between 128 to 132 lbs. It has caused me to have anxiety. I don't sleep well and have trouble breathing, and my jaw hurts. It could be due to Sjogren's and medications, not really sure. but tonite I am throwing caution to the wind drinking coffee and eating junk food. Wishing all of you a Merry Christmas...

[Corella]

This may be my imagination but Plaquenil appears to play with my blood sugar, I go hypo very very easily - usually in the morning, I take my pill in the evening.  I am not diabetic but since being on Plaquenil I struggle to keep my blood sugar up and I have lost a bit of weight as well.

But I dont know if it actually is documented as affecting blood sugar.

[Jenny]

I'm the opposite....I've gained 5 pounds since starting Plaquenil, maybe more after the last few days of Christmas goodies!  I don't think it's because of the drug. I just haven't been in the mood to diet in the past few months and I've always had a weight problem.

[Narablueeyes]

I know the Tramadol can affect appetite but this started well after I began Tramadol. 

Actually, it started after I got sick on our cruise back in March.  EVERYTHING changed then, now that I think about it. 

Foods that I used to crave didn't appeal to me anymore.  Sweets, which used to cause nausea, now tasted wonderful.  I hadn't eaten sweets in YEARS! 

I can't get enough liquid, mainly this cherry pomegranate soda from Target.  (I know the issue with the sweetener but that's a non-issue right now.) 

Yes, I've had my blood sugar checked.  My hbA1c was 5.2 and my b.s. was 80.  Salads were my life and now I can't tolerate any kind of dressing. 

About the only flavor that hasn't changed is potatoes - of any kind.

It's so weird but not radical scary.