my family is saying im too demanding.. ive changed with this illness..thoughts?

[soycoffee]

{in response to Liz Petillo}
Yeah it does Liz.  I don't know which is more painful:  the Sjogren's or losing friends and family.

I'm sure it's losing family. I have the one daughter, son-in-law, and their three children. I would admit to all kinds of offenses without defending myself, to stay in their good graces. Then come here to say -- "really I'm a good person."
.
It's true that my daughter has one 5 year-old and twins who are 2 1/2. She works fulltime, and her husband does as well. They barely see each other as a result, and keep a good relationship going nevertheless. His father died of lung cancer last spring; his mother moved in with them while she sold her house and found a condominium, which was not nice. Then I "Came down with" Sjögren's Syndrome. I did send them "Spoon theory," and we talk about other stuff, not about illness, though.

Hugs to you, and to Valene2009, and to all the rest of the posters,
Soycoffee

[valene2009]

i posted this after talking w/ my sister.. she works full time and has 2 small kids... i think she just had a bad bad day.. she usually listens to me but i know after awhile people can only take somuch..it is wearing..

[stephL]

Val, you're wise to be forgiving and take a conciliatory approach. We all have grumpy days when we say things we regret. Hang in there!

[valene2009]

everything is fine now.. spoke with my sis-she said she had the flu for several days--i just got over it myself.. and my parents came over today and brought cookies..just on impulse. i have a good family.. i think sometimes its like someone said on here-people dont want to see us so sick-its sad for them..