red eyelids that wont go away from being burned

[mncjl]

Hi!

I can certainly relate!  I have ocular rosacea, blepharitis and dry eye as well.  Last year, was the worst year ever with this. I lost eyelashes, my eyelids burned every day, and the blepharitis was out of control.  So painful!

It took over 6 months to feel a little better, and each day now, it is just maintainance from creating more pain on my eyelids.

My Opthomologist has me use a warm washcloth only!  Place over my eyes for 30 seconds to warm the oils just a little.  Then, go down on the eyelid twice with the cloth, once on the lower lash, and once on the upper so the eyelashes grow the correct way.

Then, I used "Helon" eye drops (Phillips Eye Institiute in MN) every 15 minutes until I no longer needed them.  Now, I use BLINK tears refrigerated every hour or every two hours as necessary.

I found shielding my eyelids under my covers also helps when the heat is on.  I do the same for my dry nasal passages.

I know this is painful!  As, I saw many doctors who said HOT compresses!!! HOT to get rid of blepharitis etc... That only made things worse.  As did the moisture goggles.

IT TOOK a long time...  I still struggle each day with my ocular rosacea and burning eyelids.  But, this is much better than what the HOT compresses and packaged scrubs did to my eyes.

Rosacea skin is very sensitive as you know.  So, I don't think creams will be good on your lids. As any oils can get into your tear film and make things worse.

Best advice - find a terrific caring woman opthomologist!

MNCJL

[soycoffee]

Hi!

I can certainly relate!  I have ocular rosacea, blepharitis and dry eye as well.  Last year, was the worst year ever with this. I lost eyelashes, my eyelids burned every day, and the blepharitis was out of control.  So painful!

It took over 6 months to feel a little better, and each day now, it is just maintainance from creating more pain on my eyelids.

My Opthomologist has me use a warm washcloth only!  Place over my eyes for 30 seconds to warm the oils just a little.  Then, go down on the eyelid twice with the cloth, once on the lower lash, and once on the upper so the eyelashes grow the correct way.

Then, I used "Helon" eye drops (Phillips Eye Institiute in MN) every 15 minutes until I no longer needed them.  Now, I use BLINK tears refrigerated every hour or every two hours as necessary.

I found shielding my eyelids under my covers also helps when the heat is on.  I do the same for my dry nasal passages.

I know this is painful!  As, I saw many doctors who said HOT compresses!!! HOT to get rid of blepharitis etc... That only made things worse.  As did the moisture goggles.

IT TOOK a long time...  I still struggle each day with my ocular rosacea and burning eyelids.  But, this is much better than what the HOT compresses and packaged scrubs did to my eyes.

Rosacea skin is very sensitive as you know.  So, I don't think creams will be good on your lids. As any oils can get into your tear film and make things worse.

Best advice - find a terrific caring woman opthomologist!

MNCJL

Thanks, MNCJL

I definitely agree about the skin creams! For one thing, many have some alcohol, which inflames rosacea, whether ocular rosacea or socalled "acne" rosacea, of the face and shoulders.

I've known I had ocular rosacea,blepharitis, and meibomianitis only for the last four weeks, after a lifetime of acne rosacea. I've tried compresses, but used up all my wash cloths long before the scheduled trip to the laundromat. The "teriffic caring woman opthalmologist" I lucked out on finding suggested using Ocusoft wipes for cleansing the eyelids, after the warm compress.

I still use Ocusoft, but use their Eyelid foaming cleanser

~Search within Amazon.com for Ocusoft foaming  eyelid cleanser~

And, one uses a clean finger pad to do the scrubbing.

Otherwise, my eye/eyelid care is going to be governed by an investigational new drug study (for dry eye) being conducted here. Other than chiming in on the "no creams" advice, I'm following the study instructions.

Another product that I love, for warming the eyelids, is the Thermalon eye lid compress. The picture looks strange, but it's fast in the microwave, comfortable, and does the trick of warming the eyelids and releasing the oils for tear film. Wet compresses did not release oils for me, that I could tell. The result from the Thermalon compress was amazingly different. There was sticky oil on my eyelids, which I could then scrub off with the Ocusoft products! And then in the morning, some tears.

Try  searching within Amazon.com for Thermalon-24342-Dry-Eye-Compress  -- it's kind of hard to find using search terms

For the care I've been doing, it helps to have a concave mirror, that magnifies the eye area.

Oh, the things we discover when we get introduced to Sjögren's Syndrome!

I use eye drops frequently throughout the day, though not so much as you do. I like your idea of hiding the eyes under the covers at night.

Thanks for your post, and all the best with your ongoing regimen
Soycoffee