New Here- My story

[Danielle28]

I really enjoy gardening and since sometimes I get a bump of energy at about 9 pm (after it's cool and quiet), I go out and water. I live in the city so I have a small garden but it still helps me feel like I'm accomplishing something.  However, some days it's really hard to do that. 

I'm in hopes that the teachers will understand that I will do my best-  I might have to just sit and staple things together, or little tasks. I figure I'll tell them an hour first and see how I do. I need them to understand that I might have to leave, if I start getting weak, my temperature rises, or I get vertigo or a headache.  It is a lot to try to make someone understand. However, I think they're so in need of help right now that they will appreciate it regardless.

I think it will help me to feel involved and they'll enjoy seeing me out of the house too.  I love my kids so much and sometimes I feel the worst about what my being sick has done to them.

[Meld256]

I have that little spurt of energy late in the evening, too. I've watered my plants outside at dark many times this summer.  And sure, it's an accomplishment!

I think the teachers at your child's school will be very glad that you want to help out in any way you can. You're right about getting out and getting involved. We have other people here with young children and they also worry about how their illness affects their kids.  Just remember you are still a good parent; you just may have to adapt a bit with things you do, but your children will remember the time spent and love given to them, not the fact that you were ill.
Take care, dear. 

[buddybelle]

Danielle,
Welcome! I have found this site very useful. It sounds like you are in good hands and your doctors are exploring all possibilities.
The lumbar puncture and Brain/Spinal MRI's are to check for MS and the other tests are to check for other AI diseases like SJS, Lupus, RA, etc.

I was diagnosed with MS in 1996 and just recently with SJS and other nonspecific autoimmune activity. Many of the symptoms overlap, so it is important to get a thorough work up. I have been on Beta Seron injections for the MS since 1998 to slow the progression. I have just started Plaquenil for the SJS/lupus like diagnosis.

Good luck,
Buddybelle