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back to hospital

Started by really?, August 15, 2011, 10:59:02 AM

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season

Really? I hope you are feeling better today.

gurs

Cant you talk to your doc and deman IVIG or plasmapharesis? if your doc doesnt agree, think you need to find a new doc. Whaever is going on with you, these types of treatments should only help? Im finding most hospitals dont have a clue about autoimmune, and the ER docs only seem to treat the basic emergencies. If all your testing comes back normal on alot of things, like mine usually does, guessing its autoimmune related. Have you tried plaquenil yet?

Gursie
52 years old.Primary SS, Lupus, Raynauds, POTS, Hormone issues from Hyster-menopause, systemic candida,osteoporosis,Gastroparesis, chronic neuropathy, migraines, sinus/dental issues. selective immune def/low t-cells.
Prednisone & medrol , plaquenil, diflucan, bio-estrogen creams,many supplements

really?

No,, i;mnot any better,, in fact the glands have gotten worse, nothing but thick foamy stuff draining out of them, the neuropathy has gotten 10 fold worse,, I am sureits from teh stress of not being able to eat or sleep,, weird that it gets worse,, when I walk,, (the foamy thick stuff), now I am terrified that my pancreas is involved in all this,, I have had stomach problems for along time now,, and have now only convinced my gastro to check for AIP,, what stool I am makingis getting paler and paler,,

Nat

Stay strong Really.  Maybe your new tests will help you get your stomach problems resolved. I hope so.