Flare, with hearing loss??

[Kerrikins]

CTD is connective tissue disease. Sjogrens, lupus and RA are all types of CTD.

Kerrikins

[olga]

Hi Kerrikins,

I was diagnose with primary sjogrens in Feb. 2009 but I probably had it since 2004 when I started having alot of dental problems and a very dry mouth.  My dentist thought it was my medication but I wasn't taking any medication.  My husband notice my hearing loss before me.  If my husband is in the next room and he talks to me I cannot make out what he says.  The TV has to be on real loud so I can hear it.  I also started having hair loss a few months ago.  I take evoxac 30mg 3 x daily and it really helps.  I don't think I've ever had a flare. 

[Kerrikins]

Olga, may I ask, did your hair loss start before or after you started taking Evoxac?

I take Evoxac as well, I started  almost 2 months ago and my hair had been pretty stable until 3 weeks or so ago. I've had mad sheds like this in the past but not since I started plaquenil.... The doctor didn't mention the possibility of Evoxac doing this to me though. Considering my joint pain picked up at the same time, that may have ruled it out for him, i don't know.

As per hearing, even when I don't have obvious problems like I did the other day, I am forever saying "what" to people. I don't know if it's my hearing or auditory processing or lack of concentration. I'm "only" in my 30's and I think I'm too young as well!

[drylady]

I am 32 and have experienced hearing loss in high tones. I have read that Sjogren's can attack the 8th cranial nerve which is responsible for hearing.

I think that is what is going on with me. I also experienced numbness in face and scalp. Plaquenil has helped numbness and dryness a lot.

I guess the Sjogren's is attacking my cranial nerves from what I've read.

[Kerrikins]

Cranial nerve problems are also what my Dr was worried about. After reading about it, I'm 99% sure that this is what happened to me. I've been having vertigo on and off for the last few months, and I've also always had transient episodes of parts of my face going numb. I have to admit, it's frightening! If I have another severe episode like that I'm going to the Dr straight away to get tested and hopefully get treatment for it.

[olga]

Hi Kerrikins,
My hearing loss started 8 months after I was on evoxac.  My cousin has Lupus & sjogrens is also having hearing problems.  She is taking evoxac.  Does anyone else has a hearing problem that takes evoxac?