Best Sjogren's Centers/Docs on West Coast

[lisabeth]

Can anyone tell me what are considered the best Sjogren doctors or centers on the west coast?   Or southwest or Colorado or anything like that.   I just can't go all the way to Johns Hopkins or Philadelphia...

I just had an experience with a doctor whose belief is that primary Sjogren's is basically SICCA Syndrome and that is it.  Any neurological or organ involvement is extremely rare according to this doctor.  In addition, he does not test for SSB and SSA if your ANA is normal.   I won't go into his bedside manner which was nil, but it was his beliefs that concerned me.  They seemed very outdated.  And this is a supposed Sjogren's "expert."

Thanks.

Leah

[season]

OMG. What an @$$. This doctor was not caring at all.  What an experience. I have had the same thing happen and it is  terrible.

I hope someone can recommend a good doctor for you.

[sewandsew]

Perhaps the others will come through with the info.  I know there's a good one at UC San Diego and also one in San Francisco.  Do a search of this site and maybe the previous posts will tell you.

[12lovehim]

Humm not to hijack a thread.. but is there any more info about the SJS in SF.. It's an hour away but would be well worth the drive for a great DR.. Thanks..
Keri

[lisabeth]

Thanks!  Either of those locations would be great...  Or in any of the western states.  I will do a search too.

Yes, it was not a good experience for me.....  Thanks.   Leah

[Jozee]

I live in Oregon and have been trying to find one in this state because I can't travel very far. Not good with the internet so still haven't found one.

[Calli66]

You might try posting your question at dryeyetalk (part of dryeyezone). I was an active member there when I was first diagnosed, and for several years before that, and I remember lots of discussion and doctor recommendations---for dry eye treatments---but there is enough similarity between our SjS problems and dry eye problems that you might find posting there helpful. Also, there are Sjogren's support groups on the west coast, and you might try contacting them for suggestions about good doctors. Sorry I can't help with specific names.

Keep trying and good luck.

Calli

[Jellyb]

I think there might be a sjogrens center in Tacoma washington, but not sure. Maybe Search in Bing