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Another Newbie!

Started by engy, May 04, 2011, 09:26:44 AM

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engy

May 04, 2011, 09:26:44 AM
Hello from Northeast Ohio!  I have been diagnosed with Sjogren's for a few years but my doctors would never do anything about it.  I have been very sick with many autoimmune diseases and dysautonomia and now have a new set of doctors (some specialists at Cleveland Clinic and also an Integrative Doctor). 

I have a new Rhuemy that started me on Plaquenil a month ago.  Since I also started some supplements at the same time (I know, I know) I'm not sure which is starting to help me feel better. 

I'm so glad to have found this support!  I have a wonderful husband and eight year old daughter who are so supportive of me.  I feel very blessed and lucky even considering my unlucky health issues.  I will soldier on!!!

Carie

*I posted in new members too but more people seem to look here  ;D
DX:Sjogrens w/mild Lupus overlap,Hashi,Celiac,Raynauds,Sm.Fiber Neuropathy,POTS,Fibro.,CFS,OI & other dysautonomia.
No thyroid
Fish/Shellfish Allergy

RX:Plaquenil,Synthroid,LCarnitine,CoQ10,ALA,Dribose,Tumeric/Curcumin, Milk Thistle,AdreneVive,Fish Oil,Flaxseed Oil,Magnesium,B12 shots,vit D & C

Jellyb

#1
May 04, 2011, 10:38:58 AM
Hi Engy!
Welcome! There is alot great information here and some really smart people that can answer pretty much any question you have. I have really learned alot and found this is the where everyone is supportive, and truly kind. So post away!

Joe S.

#2
May 04, 2011, 11:16:08 AM
Welcome to the forum engy
bkn C4 & C5, herniation's 7 n, 5 t, 4 l, Nerve Damage
Lisinopril, Amlodipine, Pantoprazole, Metformin, Furosemide, Glimepiride,
Centrum Silver, Cinnamon, Magnesium, Flaxseed, Inositol, D3, ALA, ALC, Aleve, cistanche
Reiki, reflexology, meditation, electro-herbalism

Unicorn

#3
May 04, 2011, 11:26:40 AM
Welcome!
It's really nice to have lots of supportive people both online and by your side. I really appreciate all my friends and how understanding they are.. or at least try to be. It's hard for others who aren't sick to really comprehend what you're going though, but knowing that they're there for you is great!

mamak

#4
May 04, 2011, 05:13:31 PM
I am a newbie too! It is just so unbelievable to me how many doctors, including rheumatologists, know nothing about sjogrens! It has been a frustrating roller coaster for me. I had a positive ssb, ana, and have swollen salivary glands. After my 2nd rheum. told me that sjogrens is not a systemic disease today, I am even more disappointed that our medical schools are giving some of these people licenses. Anyways, my next stage is to go to the big guns--An actual Sjogrens treatment center. That will hopefully happen soon. Any info. they tell me I will share with the forum.

I wish you lots of luck and look forward to sharing.
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