RUNNIN' H2O SENSATIONS DOWN LEGS! NO I DIDN'T PIDDLE!

[navydad]

 How did I miss this thread,, I started out exactly like that,, I would be standing there,, next thing I kow I;m grabbing my leg,, I swore there was water running down it,, then the weird stuff,, feet on fire,, more water runnng down the other leg,, EMG studies,, theres nothing wrong with you,, ok,, why dont my feet work,, more emgs,, nothing worng,, I could go on,, but if you havent been checked for SMALL FIBER NEUROPATHY,, get it done,, its alot easier then having them shoot your nerves full of electricity

[Cinnamon Girl]

I have had this sensation a few times...thought I was going crazy...

[Scottietottie]

Nah - your skin is just telling you lies! 

[flutterfly]

NAVY DAD~ DIDCHA THINK U WERE WETTIN' URSELF THE 1ST TIME?

i did! the thought of how it got from my whoo~who ta the mid~inside thigh w/out me feelin' it til it was down there WASN'T even a thought! i just KNEW i piddled! thats how REALit felt!

then didn't happen @ all 4 awhile & then b4 i knew it it was happenin' more & more in random places in legs & then in my arms & a few days ago in my face!
(already have trig on left side of face & weird random numb spots all over my face & tongue! like i was a couple hrs from dentist visit!)

TEHEHE!!! MY FRIEND HAD THE NERVE ELECTRICITY SHOTS!!! HE ALSO FARTED ALMOST EVERY TIME THEY SHOCKED HIM! even had the doc bettin' if this would be a ~silent~ or ~crack reverb~! was halarious cause the said friend was a big bad biker! snicker snicker...OH I THINK I SNORTED!!!

~*FLUTTERFLY NEEDED THAT LAUGH*~ XO

[flutterfly]

anybody else? please chime in! done w/ caps...unless ta pop 1 or 2 words! 

just wanted thoughts 'bout this subject b4 i go ta virginia mason please! it happens ALL the time now! & also the warmth floodin' inta feet like they have a warm fire just lingerin'! so weird cause i'm describin' 2 totatly different things but could happen back ta back also! welcome ta my wacky weirdness!

thanx whole bunches!

~*flutterfly*~

[Sha]

Hey bebe~

Ok, I was doing some research for you guys and this site describes the sensations really good but I didn't see that they gave it a name...the descriptions of the feeling will make you guys snicker though;)

http://www.everydayhealth.com/blog/trevis-life-with-multiple-sclerosis-ms/multiple-sclerosis-is-getting-under-my-skin-a-new-sensory-symptom/

Flutterfly~ I will admit this one was harder to research....been at it for a couple of hours and this page explains it the best;)

http://www.medhelp.org/tags/health_page/7687/Multiple-Sclerosis/Paresthesias---Things-That-Go-BUZZ-in-the-Night?hp_id=378

Hope this helps someone!

Sha

[flutterfly]

SHA BEBE~ i appreciate u so much dearheart! i don't know why i hadn't had u look this stuff up b4 this! (feel like a dummy) but yeh i always say stuff well similar ta what was said on the links u just posted!

like i call 'em ~snowday hands~ when i drop things 'cause i thought i had ahold of it! i say man water's tricklin' down a random spot on me!
or yay my feet don't know their touchin' the floor! i get the random numb chin...the always tingly cheek that has a zap inta my skull or this 1's grand...
the feelin like u came from the dentist & the nummin' is ~just~ startin' ta go away but not really!

man when i posted ta this last night my always numb feet (i'm used ta my feet bein' numb & not feelin' touch & not bein' able ta tell hot & cold difference! but they were extra tingly & full of warmth & i was gettin h2o trickles down my arms & thighs (i call it the ~pee factor~) but i dunno how the pee trickle end up in my arms! tehehe! not painful unless it's accompanied by the horrid 3 ta 40 second zaps! those lil' buggers STING! even tho they're short lived it gets a pixies attention pronto! 

the itchy/scratchy effect drives me crazy~er! get done itchin' 1 spot & b4 i get done...another 1 pops up! made 4 futile attempt @ sleepytime!
plus that link said it best...itchin' the tingly numb spots do absolutely NO good! (but i still try)!

as much as i felt validated that others explain the same feelin's that i have...(it is REAL...daggumnit!)...i'm sorta flustered!
now tryin' ta stop the water works from my eyes! 

i just get so dang mad that my docs didn't know this & wouldn't catch on that THAT was what i was describin'! ya know!?!

~*flutterfly wonderin if docs need ta go back ta school!*~

[flutterfly]

                                                                                   ~^UPDATE^~  

K...so this is what i found out...i have SEVERE carpal tunnel in both hands that need surgery ta stop more damage!!!

i have polyneuropathies in both hands & both feeters & no reflexes in ankels...risk 4 drop^foot & allready have sum of those signs!!!
(1st bein' NO REFLEXES in ankels!)

i have a pinched nerve in elbow (tennis elbow i think) & a frozen shoulder syndrome! they call it impingement syndrome of the shoulder!!!
i just got x~ray of that & will find out more later!!!

i got mri of my noggin & it show change ta the white matter inside there!!! doc asked if i get severe migraines or have had head trauma!!!

i say well...no headaches but i was beat by ex/a$$^hat on a daily basis!!!16 years ago
(broke up w/him when i smarted up & took a break from duders completely up 'til i found this hubbs that is!!!)
& her response was...YUP...THAT COULD DO IT!!!  

oh & all those wooky h2o sensations & creepy/crawlies & such...he says thats a very common description!!!
also peeps say they feel like they're walkin' on rocks!!!
oh & i have myopathies & tendonapathies that i have ta have muskel doc 4 but i will be puttin' that off as well 4 the time bein' @ least!!!

all this stuff i've been complainin' 'bout 4 a decade & up 'til i went postal pixie on their tushes...
i had NO ANSWERS & NO1 cared!!! BUT now oh boy is every1 scamperin' usin' words like ASAP & u NEED ta & blah blah blippity blah!!! & i say...unless ur payin' me back 4 all the appt's that u dissmissed my ailments in...
i need ya ta slow down on tests & docs & specialists & such 'cause i can't afford ta be me!!!!  

so yup thats my wacky^wookiness so far!!!

tamorrow i get ta see colon doc 4 high cea levels & pre colonoscopy appt!!! yaya can't WAIT 4 THAT!!!  
lil' background...

i have diabetic gastroperisis & it SUCKS when u have no mobility & they give ya all that MOBILITY SH#t...
u would think it would move...but alas just sits there balloonin' me up ta look 6 months pregnant & yup...
'bout the time it's time ta get scope...THAT'S wehen it moves!!! hurts a bunch & just plain...NOT FUN OR FAIR!!! 

much luv ta all the skin lyin' ta 'em peeps!!!

~*flutterfly sayin' no ta surgery & neurontin 'til i can get other sh#t^storm takin' care of!!! OH BOTHER!!!   *~