Sjogren's

[dor181]

Hello All, my name is Dorothy and I have been diagnosed with Sjogren's about 2yrs ago.  I have had many issues such as dry eyes, dry mouth and was diag. with Raynauds and RA in my spine.  I have joint pain and am seeing a Neuro for Restless leg syndrome.  I know some about this disease but not alot. I have been experiencing many different things but lately mainly night sweats, heavily.  I wake up drenched in sweat from head to toe no matter what the temp is outside.  Also, I have some twitching going on, and have daily sweating in the armpit region. 
I am seeing Rheumitology for Sjogrens/Raynauds/RA and my ANA is still very high but levels for Sjogrens are at a good level.  I have a problem with hydration. I am always drinking water, and cannot go more than 30mins. with out drinking water.  I suffer from Fatigue ALOT, but not to the point in which it debilitates me.  Thank you all for listening.

[Joe S.]

Welcome Dor181. You will find information and support on this website. Some of us have put our meds in our signature to help others.

[Sha]

Hi dorothy (that was my moms name):-)

I have the same kinda pool in the bed thing that u explain and my face is always sweaty:( haven't gotten any answers on that one yet.

Glad u found us! Welcome to the board!

Sha

[cremer]

Just like to welcome you Dorothy to Sjogrens World.

[Cheryl]

Dorothy,
Welcome to Sjogrensworld.   I hope you find help and make friends here!
Night sweats are pretty common in here.   You didn't mention your age; are you menopausal?  Some medications cause excess sweating - salagen and evoxac, for example.   Thyroid malfunction can cause it, too.   Night sweats are also a symptom of non hodgkins lymphoma.  At any rate, you should probably discuss them with your doctor.  
Best wishes!  We are glad to have you join us as a member!
Cheryl

[dbab]

Welcome Dorothy... you will find a lot of wonderful support here

[Scottietottie]

Hi Dorothy 

Welcome to Sjogren's world.

I hope you find the site useful. It's certainly friendly and supportive and also has a good search facility.

Take care - Scottie 

[quietdynamics]

I have been REALLY thirsty too. Wish I could go get a saline pic..
Gatorade with a lot of ice is helping with thirst. But my skin shows dehydration, I read somewhere that glycerin holds water and  glycerol  topical/oral helps wit hydration

Glycerol replacement corrects defective skin hydration, elasticity, and barrier function in aquaporin-3-deficient mice
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC165880/
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC165880/