Graphic details

[lizzi]

       i personally have found this site to be a life saver,literally,.i feel that we are more knowelgable than any gp or rheumy,some of my symptoms i am too

       embarased to tell my gp ,everyone on here are so friendly and helpfull that i dont feel alone anymore with this isolating illness,every forum i go on there

       is always one who tries to upset people ,why do they bother reading these posts in the first place if they offend?

         anyway i would like to say a big thankyou to everyone on here for been there for me

                       love liz xxxxxxxxxxxx

[navydad]

I;m glad this subject came up,, I thought for sure I had a blockage the past few days, today some things are moving,, ot without the help of miralax abd some stool softeners,, its not all straught yet but maybe we turned the corner on this,, I hope,, just seems to come and go

[MiJoy]

       i personally have found this site to be a life saver,literally,. (quote from Lizzi - not sure how to post quotes)

I agree totally, what I've learned from real people on this board in the real world with real problems like mine has pulled me through THE most difficult time of my life. YOU gave me the information to know what to tell my dr. and what questions to ask so that my dr. knew what direction to go in to help me. YOU gave me the courage to change to a new GP after my old one told me I needed psychiatric help. YOU told me what I could do on my own to help, giving me much needed relief that NINE different doctors couldn't give. YOU told me I needed to see a rheumatologist, when I had gone to SEVEN different kinds of specialists who didn't have a clue, YOU gave me support, encouragement, and HOPE. And yes, a lot of graphic info. that I SO needed!

Finally have my first rheumy appt. in 2 days!!!
THANK YOU, THANK YOU, THANK YOU  for ALL the details, keep 'em coming!!

Joy

[Calli66]

It's a good thing to get more comfortable talking about bodily functions. At one point in my life, I was suffering from terrible hemorrhoids, and was using warm water in an ear syringe to get things going----the pain was unbelievable. But I was embarrassed to tell my doctor, and lied and was vague, and was given some medicine to slow down my transit time----based on the faulty info I had given her.

Just knowing that many other people can have the same problems, and getting used to the language used to describe it, makes it so much easier to ask for help from the docs.

Calli

Navydad---good to hear things are moving again!

[Patze]

Good luck MiJoy and I'll keep my fingers crossed that your rheumy is on the ball for you.

Take care of yourself -

Patze

[gphx]

Poo. There, I said it.

[Meld256]

gphx,



irish,
Well said, as always!  I believe the vote is in: Please continue your informative posts.  You inform us with positive information in a professional but easy-to-understand way.  If someone has a problem with that, they probably haven't "walked a mile in our shoes".

I learn more here than from ANY doctor. POST ON, lady! 
Blessings to all,
Melinda

[sewandsew]

Sounds like SARAH needs to go back to mamby pamby land and leave us sick folks alone.

[Lesleybird]

  I don't think that anyone should be afraid to describe some symptom that has to deal with a bodily function that Sara feels offended by.  Maybe Sara is not mature enough to deal with the reality of some peoples medical conditions and symptoms. If you don't like the way a post is going then don't read it.  I have never seen a post on here that had not come from an honest problem. People should not have to be afraid to post for worrying about offending the people who don't like to deal with medical problems.   Lesley

[Patze]

Oh my gosh Gphx, that is too funny!!!


Patze

[Lily]

Hi,

Anybody who wishes to jump on me, go for it.  Won't bother me one bit.  As said in another response to another topic, I'm from the New York metro area and we call 'em like we see 'em, too.

It would be nice if this topic was put to sleep.  I don't see that it was irish's post per se that was the reason for the topic in the first place.  Pointing out the dangers of impaction is obviously a viable subject.  

Might have been the other stuff - by that I mean the ultra-descriptive language used.  And by the way, why would one draw the conclusion that somebody anybody who doesn't draw diagrams or talk the talk in that regard is "immature."  

I know of people on the Board with Sjogren's-associated GI difficulties who have never and probably will never go into excruciating detail.  There's an old saying that "less is more."

Sorry y'all don't have your own page for those "mature" types of issues.

Lily

[inga]

In real life, a room empties pretty fast if one tries to discuss the specifics of stooling.  Usually the 7th grade boys remain the longest and then will ask if you want to light your own methane.

[CAT1962]

Shani,
I am well aware of what this board is about - I have been on it for years. 

Then, why the incognito "guest" post? Don't like it? don't read it! Wow, be more sympathetic...

[genko_b]

Hi folks - just a clarification on when the name on a post appears in blue with "Guest" underneath it. That shows up when a person who has been a member resigns from Sjogren's World and is no longer on the list of members. The threads that person may have started or posted in all show their name in this way after they've resigned. It just means that Sarah withdrew her membership, that's all - no attempt to hide.

Take care,

Genko

[susanep]

sewandsew



susanep