Joint pain

[navydad]

I do not have "joint pain". My pain seems like yours. It's muscle pain and also my leg bones hurt like heck. The muscles feel like I've ran 1000 miles and then they are being shredded off my bones by wolves. My leg bones hurt. My legs feel frozen to me but to touch them they are warm. I feel like I am in a pool if ice water from the waist down and then someone has an ice pick and shoves it up my leg bones from the bottom of my foot. With every step it feels like the ice pick is being shoved farther up my leg bones. I'm told its the small fiber neuropathy. I feel cold (like cold air) as pain. So my house is 85 degrees in the winter and I am under a blanket thinking it's cold but it's really not. I just started on Savella with all the other meds and do feel a tiny bit better. I'm still at a small dose tho. I have to say that the 4th day I had been taking it I had my first day of no leg pain in40 years. It was the strangest feeling. I am back to hurting again but I am so blessed to have had that one day. It has given me hope that it may be possible to have more.  It sounds like we have similar pain. When you stand in one place, like in line at the bank, do you feel like your legs cannot hold you up. I always feel like that when I have to stand for more than a minute. When the wind blow on my legs it feels like shards of broken glass being jabbed into my muscles. I start to cry uncontrollably because it is so painful.

want to feel soemthing really weird, whenw we get some sun again,, stand in it with your legs facing teh sun,, the fronts almost feel normal,, a little hot but almost normal,, whie the back of the legs out of the sun feel like ice, so we have a mix of joint pain along with pure neuropathy told that its probably fibro, fibro does not do that stuff,, when you cant function due to pain and sensory stuff going on,, its def not fibro,,

[Loon-Lover]

Oh yes, joint pain all over. I have a herniated disk in my neck. Not bad enough to do anything about!! I have a sprained ligament in my left knee. It has been like this for
almost 2 years. Went to physical therapy for a month, only made it worse. Told by an orthopedic that he can't help me. I have tendinitis with impingement in my right
shoulder. I'm starting P/T next week. Hoping for the best.

I'm always rubbing my hands, knees, feet, legs...etc. My kids thought it was a nervous habit until I was DX'D. I have deep muscle pain & terrible joint pain.
I forgot about my hips, OUCH! Hurts to walk at times. I used to love shopping. I almost always have my daughter go now. My loving caring mother just bought me a
cane. wants me to get out more.

I have been taking Norco's for about four years ( only when really needed ) as of lately they are not helping. Dr. gave me Fentenal patches. does anyone use them? And
if so how well do they work for our kind of pain?

Have a great day,
~Laura~

[kwolfsheimer]

I have joint pain in my hands, shoulders, knees, ankles, and toes.  I would describe it as rheumatoid arthritic.  I am getting to where I have problems using my hands.

I have severe pain in my hips and low back.  It feels like somebody smashed them with a baseball bat.  I have bursitis, SI joint issues. I get huge muscle knots all over my hips, low back, and butt.  It hurts just to touch that area.  My bones hurt.  Sometimes my back is bad that i can't get out of bed.  That happened a few years ago-- one side of my hip had rotated and stuck.  That was the worst pain that I've been in-- even over natural childbirth.

For pain, Vicodin works best, but I can't get a script and it's a dangerous road to take. I have some Vicodin that I saved from my tonseilectomy and I use this if I have something to do that would involve me standing, walking, or sitting longs periods of time.  Tramedol (Ultram) works OK-- I take this at night.  I've been on every anti-inflammatory there is, but my stomach is so messed up now, that I am completely off of everything-- and I can feel it.  My doc wants to put me on Celebrex.  I just got off Neurontin-- that was a nightmare.  My doc insists that I try all these Fibro drugs and they don't work.

I am starting to get neuropathy in my hands, legs, and feet.  I tore my ACL in my right knee in half a few years ago and now both knees are messed up.  My gait is severely messed up which throws off my whole upper body.

[Autoimmunity]

I do not have "joint pain". My pain seems like yours. It's muscle pain and also my leg bones hurt like heck. The muscles feel like I've ran 1000 miles and then they are being shredded off my bones by wolves. My leg bones hurt. My legs feel frozen to me but to touch them they are warm. I feel like I am in a pool if ice water from the waist down and then someone has an ice pick and shoves it up my leg bones from the bottom of my foot. With every step it feels like the ice pick is being shoved farther up my leg bones. I'm told its the small fiber neuropathy. I feel cold (like cold air) as pain. So my house is 85 degrees in the winter and I am under a blanket thinking it's cold but it's really not. I just started on Savella with all the other meds and do feel a tiny bit better. I'm still at a small dose tho. I have to say that the 4th day I had been taking it I had my first day of no leg pain in40 years. It was the strangest feeling. I am back to hurting again but I am so blessed to have had that one day. It has given me hope that it may be possible to have more.  It sounds like we have similar pain. When you stand in one place, like in line at the bank, do you feel like your legs cannot hold you up. I always feel like that when I have to stand for more than a minute. When the wind blow on my legs it feels like shards of broken glass being jabbed into my muscles. I start to cry uncontrollably because it is so painful.

want to feel soemthing really weird, whenw we get some sun again,, stand in it with your legs facing teh sun,, the fronts almost feel normal,, a little hot but almost normal,, whie the back of the legs out of the sun feel like ice, so we have a mix of joint pain along with pure neuropathy told that its probably fibro, fibro does not do that stuff,, when you cant function due to pain and sensory stuff going on,, its def not fibro,,

When I stand in the sun my skin feels like it is on fire.  Even for a few minutes.  I can't tolerate it.  Can't tell if that's some kind of sun sensitivity or because I am so light skinned.

[Jozee]

want to feel soemthing really weird, whenw we get some sun again,, stand in it with your legs facing teh sun,, the fronts almost feel normal,, a little hot but almost normal,, whie the back of the legs out of the sun feel like ice, so we have a mix of joint pain along with pure neuropathy told that its probably fibro, fibro does not do that stuff,, when you cant function due to pain and sensory stuff going on,, its def not fibro,,


I have done the above before. I could never explain to anyone else what that felt like. They thought I was making it up. Glad I'm not alone.

[harlin]

Joint pain all over. Especially knees, ankles, wrists, feet, hands and shoulders. Yes, I guess everywhere.

Navydad, It does come and go. Different areas different days. Nights are usually the worse. If I could just sleep!! I wake up in pain all night long. My hands get so stiff, I wake up and I cannot bend them. do you have the same issues?

I don't expect this to ever go away, I would just like to be able to tolerate it a little better.
Love, harlin

[kwolfsheimer]

Joint pain all over. Especially knees, ankles, wrists, feet, hands and shoulders. Yes, I guess everywhere.

Navydad, It does come and go. Different areas different days. Nights are usually the worse. If I could just sleep!! I wake up in pain all night long. My hands get so stiff, I wake up and I cannot bend them. do you have the same issues?

I don't expect this to ever go away, I would just like to be able to tolerate it a little better.
Love, harlin

Harlin,

That's me, in a nutshell.  The pain is worse at night aand in the morning before I get going.  And you are right, different pain for different days.