newbie

[patknit]

Hi All, 
I just found out this past summer that I have SS.  I take evoxac and I am seeing the side effects now.  The fatigue I had already, but the night sweats and nausea are new. ( Maybe I'll lose some weight)  I was wondering about the side effects:  the evoxac has lots of them but are these side effects the same as the symptoms  of SS?  I am also wondering about dry, peeling skin on my hands---do any of you have this?  the evoxac cleared this up completely for me.
Hoping to hear from any or all of you.
Regards,  patknit

[susanep]

Hi patknit, and welcome. When I take my evoxac it isn't long until I feel warmer, but it sure helps me with the moisture in my mouth. I am sorry you have to deal with all this stuff, but you have come to a wonderful place where everyone cares.

susanep

[Patze]

Hi Patknit,

Let me also welcome you to the SJS World and family!  Please do look around the board as I think it's pretty darn informative and like Susanep said, it is a wonderful place to be.

I sure understand the fatigue, oh boy, there were days that I still don't know how I survived them all, especially at the office (still work full time).  Have you spoken to your doctor about it? 

I sure also understand the hands peeling, oh my goodness, I grew up with that and no doctors could explain it - very weird (they still peel now and then). 

Again, welcome and I hope to be able to chat with you soon.

Take care -

Patze

[SLEEPY101]

Welcome
  It's hard to say if the symtoms are from exovac or SJS. Could be a combo of both. I only take exovac at night because of the exessive sweating and nausea and dizziness. The fatique is prob from SJS. Hope you get some relief soon

[Carolina]

Hi Pat, Welcome to TEAM SJOGREN'S (we don't all have diagnosed Sjogren's, but we're all on the TEAM).

I had to cut back on my Pilocarpine (same effects as Evoxac) because I was get amazing dripping day sweats!  Never had night sweats.

So I cut back on my day time dosage.

It really helps my mouth, tho' I do have to carry bottled water and some times get rather croaky when I'm talking too long.  (amazing, sometimes I talk too long?  Imagine that!)

Glad your hands improved, too. 

You'll get lots of information and support here, Pat.


And for many of us, this is a long term and somewhat elusive condition, with ups and downs and mysteries galore.

If you get a chance to give some information in your signature area, that is often helpful to others.

For example, since I am 68 some of my conditions and syndromes may be related more to my age than anything.  Of course I resist that idea entirely!  However.

Keep us posted on how you're doing!

Kisses

Elaine (aka Carolina, where it's been raining for a week!)

[Scottietottie]

Hi Patknit 

Welcome to Sjogren's world.

I hope you find the site useful.

I can't comment on the evoxac because I've never taken it. I have night sweats without it - and hot sweats during the day as well come to that! Lots of sjoggies feel like our thermostats are broken!

Take care - Scottie 

[Joe S.]

Welcome.

[newhorizons]

Hi Patknit, Welcome Aboard!       To let us know more, will you be kind enough to use the profile button above posts. And, go to signature area and give us info. You can see by info at bottom of our posts what we have included.

Just an idea about your hands... Do you have a job where you wear latex gloves? Daughter has also been diagnosed with SS and was having trouble with her hands peeling. Turned out she had become allergic to 'latex'.

Joy

[bloodless]

Welcome. I never had a problem with evoxac, but I changed to salagen because it has a generic. It's way less expensive. Maybe you could tolerate it better.

[LeoLady]

Hello and welcome!

Hugs,

LeoLady
(Melinda)

[Meld256]

To one Newbie to another, welcome! 

Lots of wonderful people here to ask a question or vent or get support with whatever. Please feel welcome.

I don't have an answer about your meds, unfortunately, but I'm sure others here will.
BTW, I've just noticed the comments about our "temperature gauges" being broken. Mine's been a dud since I became ill; if I get too hot, I feel like I'm going to pass out and a few minutes later I can be freezing. If I get cold I'm in pain. Now I don't feel so confused by this.
p.s. LeoLady, didn't realize you are a "Melinda", too! Not many of us.

Take care,
Melinda

[lynnmarie219]

Welcome to Sjogrens World Patknit!

I hope you find these Boards helpful! Please feel comfortable in coming here as often as you want for information, support, friendship and some laughs too!!