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When is a flare, really a flare ?

Started by SeaBreeze, January 03, 2009, 03:36:54 PM

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HelenJames

I think we all get a little bit distracted from the main topicstarter's theme

eyeamdry

This thread is almost two years old.  I think it was retired.  ;D  Lucy

SeaBreeze2

Hi...  As Lucy said, this is an old thread that I started over a year ago..
I'm very sorry that you felt distracted by the theme.
Keep reading, there are tons of great threads and helpful information.
Best of luck to you...



Seabreeze2 a.k.a. Seabreeze  ;D


gphx

MS has some premade terms that lend themselves quite well to Sjogren's issues.

An 'exacerbation' is a medium to long term resumption of symptoms or addition of new ones.

A 'pseudoexacerbation' is a very short term (typically 24-48 hours) aggravation of old symptoms
brought about by temporary factors such as stress, unrelated illness, diet, heat, etc.. A pseudoexacerbation
just highlights existing damage, it doesn't include anything new and typically passes fairly quickly.

Borrowing from that model one could say a true flare is anything over 48 hours or anything involving new
symptoms. It's a useful model for me and hopefully for others too.
Dxed unspecific 'sicca syndrome' eyes and mouth. Neuro issues, muscle weakness. SS Seronegative but high inflammatory markers. Diabetes dx 2010. Glucose control improved neuromuscular issues. Enlarged thyroid under observation 2013. Yippee.