Motion sickness???

[Poochie]

You can count me in on the vertigo problems.  I have had veritgo problems for years now.  And yes, Julie, I always feel as though I'm walking on a mattress.  It's quite frustrating, to say nothing of the sight I display when walking from my car to the grocery store.    As our Chloe use to say "I'm going to try getting drunk once, just to see if I can walk straight". 

I would strongly suggest you talk this problem over with your rheumy.  Mine sent me directly to a neurologist.  After a barriage of tests, they decided it was Periphral Neuropathy with Central Nervous System involvement. 

Please have it looked into. 

Pooh

[RobinBat]

I too have had motion sickness all my life! To fly I use scopalamine patches(don't know if spelt correct) works the best of any of the motion sickness remedy's I have tried. I have also had and still have traumatic vertigo...this is always here to some degree but gets worse with certain movements. I also use the antivert which helps some but nothing really works. My life is always just slightly off balance/dizzy....

Is this related to our sjogrens? I have no idea...but I do have it too!

[Hypermobius]

Just thought I'd update what happened to me recently. I just got back from a weekend trip, but whoa did it floor me with a major flare. The weeks leading up to the first flight I had been feeling fine; taking all of my supplements, with no problems driving, no bad bouts of dizziness...nothing. I went into the flight thinking....oh I'm ok now..this should be fine...boy was I ever wrong!

As soon as the plane started roaring down the runway, boom it hit me like a lead brick. I felt dizzy, nauseous, and immense pressure in my head. My face was bright red. Turbulence was a nightmare. It was like one of my worst SJS episodes all over again. I was caught in almost a panic attack sort of state. Thank goodness it was only an hour flight....I don't think I would have made it any further. My neuropathic symptoms continued throughout the trip as I passed from one 'trial' to the next.

First one was a restaurant that was outdoors, which was too hot in the humid summer evening...I couldn't eat too much there from the feeling of overheating. Then the next day, to a place for breakfast where there were flashing lights that made me miserable with nausea. I couldn't even eat one bite. Motion sickness, dizziness all returned. Final day of the trip, a restaurant high in the sky for a spectacular view of the setting sun. Only problem was that the entire restaurant rotated ever so slowly during the duration of the meal. I couldn't even stand 10 minutes in there before I had to ride the elevator back down and wait until the rest of the party finished their meal.  Embarrassment aside, it was such a bad experience.

So much for the 'vacation'......more like 'trials and tribulations' if you asked me.

For the flight back home, I readied myself with everything I could. I took a slightly larger dose of alpha lipoic acid, wore accupressure bands on my wrists, took meclizine for the first time in months, had a pack of anti-nausea ginger gum, and acutally was able to make it through without the whole panic attack state. The people I was traveling with said I looked like I was a scared deer in the headlights for the take off though. I survived at least.

But, I think I'm paying the price for it today. Today was the first time in a very long while that I had symptoms of dizziness and head pressure with no discernible provocation. Sad...looks like back to square one for me, after doing so well for weeks and weeks. Good news is I see my Rheumy on thursday so I can impart my experience to her so we can maybe get this sorted out in the end.