News:

These message boards are a friendly helpful place, please post with thoughtful consideration of others. Thank-you.

Main Menu

New Member

Started by Rayven, September 02, 2010, 03:42:43 PM

Previous topic - Next topic
Print
Go Down Pages1
User actions

Rayven

September 02, 2010, 03:42:43 PM
Greetings,

Just stopped in looking for Sjogren's info.  Figured I'd actually say something instead of lurking as per my usual.

Seems there's plenty of other people dealing with this roller coaster.

Peace and strength.

Rayven

malditogrillo

#1
September 02, 2010, 04:33:36 PM
welcome!

Scottietottie

#2
September 02, 2010, 05:06:16 PM
Hi Rayven  :)

Welcome to Sjogren's world. It's better being on a rollercoaster with other people!

Hope you find the site useful. It's certainlyt supportive and friendly.

Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
https://kiwiirc.com/client/irc.dal.net  (way to chat + nickname and #Sjogrensworld)


Never do tomorrow what you can put off till the day after tomorrow!

Joe S.

#3
September 02, 2010, 06:00:11 PM
Welcome Rayven,

I am into alternatives. Some of us post what we are taking in our signature.
bkn C4 & C5, herniation's 7 n, 5 t, 4 l, Nerve Damage
Lisinopril, Amlodipine, Pantoprazole, Metformin, Furosemide, Glimepiride,
Centrum Silver, Cinnamon, Magnesium, Flaxseed, Inositol, D3, ALA, ALC, Aleve, cistanche
Reiki, reflexology, meditation, electro-herbalism

Patze

#4
September 02, 2010, 06:25:10 PM
Hi Rayven,

Let me also welcome you to the SJS World and family!  I'm glad that you're finding the board helpful, and let me tell you, if it wasn't for the wonderful members here, I sure don't know what I would have done. 

Can you tell us a bit more about you so the members can get to know you better?

Again, welcome, and I hope to see you in chat soon.

Take care of yourself -

Patze
Our home page  http://www.sjogrensworld.org/index.html
Live chats  http://sjogrensworld.org/chats.htm

Everything has beauty, but not everyone sees it - Confucius

The important thing is not to stop questioning ~ Albert Einstein ~

Sero Negative Queen

Rayven

#5
September 03, 2010, 04:48:44 AM
Well, seems I have Sjogren's or I wouldn't be here ;)  Took about 2 years to diagnose.  When the diagnosis finally came, a lot of symptoms seemed to fall into place.  I consulted a rheumatologist and she put me on Plaquenil.  I don't know if I've noticed much of a difference.  But not my dentist, eye doctor and regular doctor at least all consider Sjogren's as we're talking through things.

Had to have dental work done.  And my eye doc put in punctal plugs which has helped quite a bit.

Now it's just dealing with feeling like I have the joints of a 90 year old when I'm in my 30's.

I live in the midwest.  Have lots of pets. And my lawn looks like scorched earth because we've had no rain :P

At least I'm not dealing with Earl.

Seeker

#6
September 03, 2010, 07:29:47 AM
Welcome Rayven, It does sound like you are on a roller coaster. A roller coaster is a lot more endurable when the ride is shared.  That's what this forum is all about.  Sharing and getting the support you need.  You are not alone.  Don't be a stranger and post often.


Seeker
Every day is an adventure, waiting to happen.

lynnmarie219

#7
September 05, 2010, 06:29:55 PM
Hi Rayven,

Just adding my welcome to you as well!

I'm glad that you found us and that you are finding this site useful!

Come back often and jump on in whenever you feel comfortable!  :)
Print
Go Up Pages1
User actions